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No. I complain about the hole and swelling of the rectum and painful defecation and difficulty passing gas, and this is their solution. I'm really frustrated. The complaint was over the phone. These inaccessible docs!!

Oh, poor girl. I hope she is feeling better.

We did a pelvic MRI just before Thanksgiving. It showed "mild inflammation". I don't know why she isn't just scoping, except that Jae has this new hole on her anus now since our last visit and maybe is checking for fistula or abscesses? What gets me is they want us to find our own surgeon to...

So they called yesterday from GI and said that her Prometheus test was too high (which is making her WBC too low) and they want her to lower her 6MP to previous dose. For the rectal pain, they want her to continue the melamine enemas and find a colorectal surgeon in our area who does rectal...

She just woke up at 3:30 am with the "worst abdominal pain in 4 years". Thankfully it relieved with a BM and Digestzen. She took a tizanadine for good measure and is back in bed with a heating pad.

I'm waiting to hear back from both Neuro and GI. She has also been referred to new Neuro and new GI for second opinions. She is overall better without the seizure meds but still having seizures and her rectal issues not resolved.

A little better having stopped the seizure medicine, but still having pain after meals and still having ano-rectal symptoms. Weight back down to 116 (down 9 lbs now).

Today is the 4 year anniversary of the first pediatric GI visit she had before being diagnosed with Crohn's. It was the first time any doctor suggested Crohn's might be the problem. It was the first time we weren't blown off for her symptoms. She was 13, 5'1" tall and 68 lbs. She could...

Does your father in law have active TB or has he been treated and no longer active. I don't think any of you should go if he has active TB.

I remember when Jaedyn and Jack had so much in common. Your doctor switched him to Remicade and my daughter's doctors are still not making the move. Your son is doing great. My daughter is still suffering. I wish we had the same success story... I'm really glad for your son's success...

You can ask the pharmacist.

Three nights have gone by with her new seizure med. Today she was very tired. Tomorrow we increase the med to twice a day. Dose is still very low. She reported not being able to think clearly enough to do her schoolwork on Friday. I think she may have had another seizure this morning. I am...

Aw! Dangit!

:(. For us too. I have to start all over applying again.

IBS is a term used too frequently. It should require a thorough work up to rule out other bigger problems first, but many docs go the other way and make you prove it is more... It's maddening. In these cases I think IBS means I BE STUPID (referring to the doc being too stupid to figure it out).

Have you tried to get her Medicaid for kids with chronic disabilities as a backup? In the past this was a lifesaver for us when the insurance denied things like EEN. It is a pain to fill out all the paperwork and takes a couple months, but well worth it for matters like these.

So far Jae has had two nights of her new seizure med. Yesterday we went shopping and went to a little coffee shop and discussed having a little shop like that some day. It was good for both of us. Last night she started her new enema. Here's hoping it will make a huge difference!

Poor Lucy! I have no experience, but I sure hope it works.

How is this going?

She has been at a better place. Right now I was just informed by her that things are trending down and I am concerned because of what happened with seizure meds in the past. I will be doing some more research to figure out who she can see.