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There are stages of POTS?

She's been having rectal symptoms for months now but the doctor didn't "see" anything on external exam other than a little excoriation. She said Jae is wiping too hard, but that isn't the case. I feel finally they are seeing something and at least are trying something.

Dancemom, I'm sorry this has been going on so long without direction. I feel your frustration. I'm saying a prayer for her right now!

Jae had her MRI on Monday. It is showing rectal inflammation. They want to start her on Asacol suppositories at bedtime. I see that it can be made more toxic with Aza. Isn't 6MP similar to that? She is currently on her monthly, which has stirred everything up and she's in a lot of pain. To...

I'm sorry to hear of your daughter's ongoing pain. For some reason, I wonder about a vascular issue with your daughter. Perhaps she has a malformation that didn't grow well with her and it gets kinked off causing infarction or oxygen deprivation.

Jae showed good improvement Sunday through yesterday so we waited to see the GI. Today she is not so good. Typical. She will have another MRI soon and fecal calprotectin. She is going to try to get the geneticist to get Jae in to see if she has Ehlers Dan Los. She said the on call GI didn't...

She is eating and drinking very little. Labs one week ago were normal and she was hurting then. I haven't called her GI because it really got out of control since Friday night. She slept good Friday night and slept in until 10:30, but wouldn't eat all day. Her pain returned in the evening...

Jae has been suffering for weeks, getting worse for the past several days. Evenings are definitely worse. She can't eat or drink without pain. She has a GI appointment on Wednesday. Should I wait or bring her to ER? She has lost at least 5 lbs.

I believe it is cocoa that she reacted to. No, never mentioned eosinophilia disorders. I was just reading about food protein-induced enterocolic syndrome. That seems to fit her symptoms except she doesn't vomit or have gerd, but she used to. Is that similar? She doesn't rash or get...

Skin testing only. She does not have eczema and her only environmental allergy has to do with grasses. I will try eliminating these from her diet and if it makes a huge difference for her, then we will praise God. If not, then we keep on looking. I don't care who wants to call it a true or...

After my youngest daughter was diagnosed with a corn allergy, we finally started making strides towards health improvements for her. This got me wondering about Jae and what might have been missed. I asked her allergy/asthma doctor about whether she had been tested for corn too. She hadn't...

I'm sorry to hear Caitlin was back in the hospital. Jae is going downhill this month also, but not to that point, thankfully.

I hope she doesn't have c.diff.

I'm so sorry about all the trouble she is having! Praying you all can find the right solutions.

I think the Adderall is the culprit too. I agree with boosting calories however you can. Peanut butter toast is a great idea.

Jae is a junior this year, but wants to take a gap year after high school, so I'm not sweating the college stuff yet... I know what you all are feeling though. My oldest started college 7 hours away this year.

Sorry to hear it. Did anyone do a urinalysis?

So as mentioned above, positive Hep B antibodies does not mean he has the disease. They are probably testing further to look for acute disease. There is no Hep C vaccination that I am aware of. The liver biopsy sounds like someone is keeping the ball rolling. It is hard to be patient when...

I think it is good if he is being thorough and wanting to get it right early on. Did he say what he wanted to do next to sort it out?