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We are in recovery! It went GREAT!!!!!! 2 sections were removed, both short though. Disease was very bad, bowel was erroded into abdominal muscle. Never would have been fixed w/o surgery. Dr said it could not have went better!!! He's in a lot of pain right now, but has an epidural so the...

THANK YOU Mark! LOL @ Dusty! Thank you Rachel! We are so ready for this! Thank you all for your well wishes! I will report as soon as I have good news! :-)

MMMMMMMMMMmmmmm!! Mark, I have been living on hospital food for too long ... these biscuits look delish! Ant threw up his prep the other day too! Blech.

Dusty, I really love Roo's confidence in wearing her "badge of honor"! I think that is awesome! I hope to be as successful as Roo! I can understand how scary that was for you and Roo to go through the first time, to want to avoid that for Matt. I wanted to avoid it also initially (hence...

Mark, yup you are right ... I forgot about that! They have definitely quickly switched gears. Thanks guys. Tonight we are hanging out at the hospital ... rented some movies. Tomorrow is prep! I did want to share that this afternoon I met another parent here at the hospital who is living at...

That is too funny Julie! I will let him know! :D Mark - I guess it seems quick, but since dealing with the same stricture since September with no improvement (and especially with a couple weeks in the hospital!) I think we are ready for this! Of course we are nervous, but mostly happy to put...

Super quick update - Colonoscopy this morning, CT scan this afternoon, surgery Monday to remove the stricture (UNLESS they can drain something this afternoon, which then surgery would be pushed out to see how the draining affects the inflammation). Surgeon said it is a 1 in 500 chance of...

Hi mark! So glad to hear all went well! Pryaing for some good numbers on your next set of labs. Lots of hugs to EJ!

Thank you Joe! Doesn't look like that is happening, BUT at least we are at Mt. Sinai (which I believe you suggested to me some time ago!) Interventional Radiology said no ... won't drain him. The nurse just told me tonight they are starting his prep for colonoscopy tomorrow, which is news to...

Hi DustyKat, Thank you re: Max. I know you can relate - it is bad enough having a child in the hospital, but then to have to give them such bad news is heartbreaking. He is very sad, but yesterday we were able to look through some pictures and share some stories about him without tears. I am...

Not taking him off of the IV antibiotics. They are going to see if interventional radiology will be able to help drain some of the phlegmon during a scan with an anesthesiologist. Anyone been through this? If it works, it may help reduce inflammation quicker and he can eventually go home and...

Awww thank you Brians mom. We aren't thinking of another. We actually have one more, she's younger and we've had her only 3 years, but I can't explain ... she didn't bond with us like max. Anthony took care of Max since he was a baby rattling his cage to get out. Delilah, on the other hand, is...

Thanks so much Rachel, that was sweet and made me feel better. :) Anthony was (is) very upset, but we talked about the happy times we've had with him and that he has been sick for some time, and is no longer suffering. Ok, need to change the subject. No more crying. So, we have a plan! Trying...

Thank you Mark and Julie. I am still alternating with disbelief that I have to do this tonight to complete and utter grief over this. I am torturing myself by watching little videos I have of Max on my phone. Part of me wonders if maybe I can just avoid telling Anthony a little longer ... but...

Well, how do I deal with this now? I came home to spend the night with the twins tonight as Ant's uncle is staying with him, doing a whole football and video game night. I haven't been home in ten nights, except to pick up the kids and my mom last Friday (briefly). Tonight I come home to find...

Hi Brian's mom, Doctors here haven't even mentioned SED/ESR, so unfortunately I don't know the answer to your question. :( I am thinking of Brian and please let us know what you find out. Maybe you can post your question on one of the main boards that gets more traffic - there are sooo many...

I know!!! Well, the surgeon is concerned of a couple things: 1. That the phlegmon is not cleared up entirely and he would operate and there would be puss, etc. which is DOABLE but would be a less than ideal situation. 2. He is not convinced there is no abscess. He wants to see a new CT scan...

Thanks sooo much Rachel! About an hour after my meltdown, the doctor did return for an update. I guess I am used to being left in the dark, so to speak. So, they are going to continue to leave him on the IV antibiotics over the weekend and do a repeat CT scan this weekend, and the surgeon...

Okay, another minor (or major) vent here. I feel like I am on the verge of a breakdown. I have been waiting three days for this "meeting" to occur so they can decide how to proceed. I have been sitting here for 10 hours waiting for them to return with some news on what procedure or treatment...

Thank you Amirah. I really admire you, I don't know how you have done this all these months. I guess it is like they say ... when you find yourself in the situation, you just find the strength and you deal with it. I really pray you guys get home sometime soon! Julie ... My company is large...