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Hi Brian's mom, I have read about these also, although Anthony doesn't have them (I thought he did initially). I am sorry to hear that Brian has them. Hopefully they are something treatable?

Hi Cuddlepops, I am sorry you have to be here, but welcome! I am pretty new myself but there are a fantastic group of parents here! I am sorry I cannot speak specifically to the WBC and pentasa's effects, but I know that medications can definitely change the levels. My son's are fine right...

Okay ... 2 GI docs say now surgery, Surgeon says he is not sure it is time for surgery yet. Frustrated. Tired. Headache. Really crappy mood today, want to shower in my own shower, sleep in my own bed, tuck my kiddos in at night. Including Anthony - in his own bed. Small rant. Drs still...

Julie - I just noticed Claire's 'Tinkerbell vitamins' ... too cute! Made me smile!

Haha, thanks for the spelling lesson Dusty! I knew that looked wrong! So, you guys may be right. We still don't have a final decision but the way it was explained to me is that it appears if the area surrounding the stricture does not have the normal amount of blood around it (?) and is...

Good afternoon moms and dad, lol Anthony had his ultrasound this morning. Still waiting for results. They are going to compare it to his last CT scan. During the ultrasound, they did see the phlegmon and the stricture, but she said she didn't see an absess (I feel like I am spelling that...

Thanks so much Mark! Every parent here is quite awesome. ;-) Well, today we were told that if the ultrasound looks good we could probably go home this weekend. We are meeting with surgeons *just in case* so they are familiar with us, even if it is something possible in the future...

Thank you so much Amirah. I just posted on Leya's thread. I'm so happy to see she is out of the ICU! Julie, I keep telling myself exactly that ... he is in the right place. Update: they have taken him back off foods, back on IV fluids till this new pain gets sorted out. Running more labs...

Thank you Julie. So Ant was awake last night in pain. He just woke up and has minor pain. This is the fiirst time since we were admitted that he's having new pain. :( We still won't know anything until tomorrow, no tests scheduled today. I don't know what I am going to do about work and my...

Thank you Dusty! So we are continuing the iv antibiotics and ultrasound is Tuesday morning. Ant has a little pain toda, but CRP is down to 35. Its just a waiting game @ this point. Thank you for all your thoughts and prayers. I will continue to update you. In the meantime, I need to figure...

Well, his CRP went up today to 62 rather than lower. He feels good, so I'm not sure what that means. We will see what GI docs think tomorrow. Kimmi, there are a couple of moms here with great information on the 504s to help you. The link to the ccfa is a template to start with. Good luck!

Ugh, sorry about typos! On my droid, lol.

Hi everyone. Ant is still asleep and I don't hane to entertain him right now :-) so I'm checking in. The IBD team here has decided to continue the antibiotics for 24 to 48 hours and re-evaluate. They'd lime to see his CRP decrease (its 52 right now). Then, they will ultrasound the area to see...

Thanks julie! He is taking cipro via IV so far and that's all I know for now. He is 'tender' now, not in pain like before. He didhave some morphine around noon but I'm sure that's worn off by now. He is anxiously awaiting food which is good. :) will keep you updated!

Thank you again everyone. Dusty an dingbat (sorry I don't know your name! I feel bad calling you that haha) you two are both correct. We were transferred to mt sinai, will see how to proceed from here. Ty all!

Thank you so much all. We just got into mt sinai and are wtg to hear what GIs think and radiologist here will read his ct scan. They have said he can eat, so I think that's positive. I will update soon. Thanks to you all! Xoxo

Thank you so much! I'm googling on phone too but didn't come up with that page. This may explain his high wbc count he's had a couple weeks. I hope its treatable with antibiotics too! :( ty sooo much. I wonder what differentiates this from an abcess? Id appreciate if anyone has ever had...

Ty so much Julie! Its near his stricture. The u/s on testicle said all was ok so they think its referred (?) Pain, I guess like radiating there. @ the very least they would like to admit for antibiotics. Fingers crossed that its an easy fix and we can do antibiotics @ home hospital rather than...

At hospital right now. Son had severe abdominal pain, ct scan shows a mass near his stricture that they said looks like a phlegmon? They are doing surg consult and calling his mt sinai dr. Anyone know what this is!??? Sorry typing bad, on phone. THANK YOU!

They said it looks like a phlegmon and are calling for a surgical consult. Anyone know what that is????