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Hi everyone, Can someone tell me how weaning off prednisone typically goes, and if this sounds correct? My son's prescription reads as follows: (10 mg. tablets) 2 weeks - 2 tablets in the AM, 1 in the PM .... then .... 1 week - 2 tablets in the AM, .5 in the PM .... then .... 1 week - Just 2...

Thank you all soooooo much. We had a rough weekend and are getting back into the swing of things. I really appreciate you guys reading. Thank goodness for this board. Dexky, I keep reminding myself of what you said: the information and medication will continue to improve, maybe this will all...

Hi everyone, Is loud (I mean loud!) gurgling noises common with Crohn's? My son has been having some pain recently and each time it seems to be preceeded by a loud gurgle (and sometimes, gurgling without pain too). At home it is no big deal, but in a quiet classroom, he gets really...

I just wanted to vent/cry a little and I figured no where else would others be so understanding. As I listen to my poor son in the other room who is experiencing a pretty bad flare up right now, and I am just worried about his future and feel horrible about him going through this. He had...

Hello everyone, Being new to Crohn's, every pain or discomfort my son has freaks me out, to be quite honest. Is there a way to distinguish what is "normal" pain or discomfort for a Crohns patient versus what is serious and needs to be addressed immediately? I guess I am wondering how I can...

I am not sure. Insurance would not cover Pentasa either when we were first discharged from the hospital, and because of that he is taking Asacol instead. Is this normal?

Thanks again CDDad. Unfortunately, not one of the surgeon's listed take our insurance! (MVP) I am not in the position to pay out of pocket at this time. Thank you for your help, though.

Thank you all for your replies and information! Thanks CD for the link, I will also check that out. I wanted to update you on the situation and get some input. The Ped GI says she is not certain that he will need surgery yet, but is sending him for the surgical consult to see. He has 6 cm of...

Thank you both for your replies! Dusty, I checked out both threads. Both are very encouraging, thank you! A little scary, yes, but better to know what to expect. I am concerned about my poor son missing so much school, too. Joe - I am going to the Maria Fareri Children's Hospital at...

Hello everyone, My son, new to Crohn's, had an upper GI series and small bowel (??) test last Friday. (barium x-ray) He also has an upper endoscopy and colonoscopy scheduled next Tuesday. The pediatric GI specialist left me a message (we are playing phone tag and now she says she is off and...

Thank you all for your replies and suggestions!! Amy - "Nature's Promise" - is that a Hannaford supermarket item? I will check those out!

I know this is kind of a funny question, but I am dealing with feeding a 13 year old. :D I know corn is absolutely off limits. Does this include tortilla chips, and would this include Doritos? I haven't been letting Anthony eat them, he insists they don't count. (Of course he thinks he...

This is very helpful, thank you! I know that this is what I am supposed to feed my son, but is there anyone else out there that still feels this isn't nutritious enough? I guess I am so conditioned to be serving the kids whole grains, fiber, and veggies that this just seems so UNhealthy. It's...

Thank you, lovesugar! So far, it has been 8 days without pain. He actually isn't big on sugar (not sure where this kid came from, haha!) so if sugar were to trigger him, it wouldn't be the worst thing in the world. Right now he can't have vegetables and I think he misses Chinese food the most...

Hi everyone, I was searching for books on Crohn's and this came up. Has anyone ever tried this, and do you think it is helpful? Seems to have good reviews on Amazon, and I am thinking it can't hurt. I am new and not allowed to post URLs, but it is called Digestive Advantage Colon Care...

Thank you for the suggestions, everyone! I forgot to mention - he is 13, so not quite a little one anymore and pretty bummed about the lack of food choices. I actually stopped the iron for two days because of the constipation. I am wondering if he should start it again because of the amount...

Hello everyone, My son was just diagnosed with Crohn's (after having stomach issues for the past year) when he had a partial blockage and inflammation last week and ended up in the hospital. He had been pain free since Saturday, on Pentasa until Tuesday, switched to Asacol on Wednesday...

Thank you all for the welcome and information! He is back in school today and having a good day after some constipation and pain for about 36 hours. I did buy ensure also, and he actually likes it (score!). Yesterday he drank one of those, had half of a sandwich and some macaroni and cheese...

Thank you all for your input! I was really worried about another blockage because of the vomiting, but he had a BM this morning. He hasn't begun the prednisone yet (taking Asacol right now?) because he wasn't able to eat last night and we were told it has to be taken with food, so we will...

Hello, I am new here. My son has had stomach issues which have increased over the last year. Last Thursday night he got very sick (stomach pains, vomiting, hadn't used the bathroom in 3 days). The dr thought it was appendicitis, but it turned out he had a partial blockage (which corrected...