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  1. Rebecca85

    I just don't get it.. WHY so sore??

    Fingers crossed that the biopsies show something then!
  2. Rebecca85

    Preparing for GI doc visit

    I would want to know why you have a b12 deficiency- that is extremely rare in healthy people, and points to some sort of digestive problem.
  3. Rebecca85

    I just don't get it.. WHY so sore??

    Did they take lots of biopsies? To rule out any microscopic inflammation?
  4. Rebecca85

    Camel's milk

    Here's the abstract of that one study (couldn't find full text on web). Actually, calling it a study is a but ambitious. It sounds like a piece of observational writing, and the writers seemingly made no claims about camel milk treating Crohn's, never mind curing it. So they are saying that...
  5. Rebecca85

    Camel's milk

    I'm tempted to call BS on this one. A LOT of websites are claiming that camel's milk cures Crohn's based on a single research study. I think people are just jumping on the bandwagon.
  6. Rebecca85

    I don't know what to do?

    The good news is, a lot of what you are feeling will be due to the pred, and as you taper your emotions will settle down. As for your parents, you could try getting some leaflets from Crohn's and Colitis UK (or whatever country you are in should have it's own). They cover all sorts of topics...
  7. Rebecca85

    What a week it's been!

    I think you must have gone to the same hospital as me- the bit about doctors doing things and not telling you why really struck a chord! Luckily, the doctors you see as an outpatient are better. The hospital docs tend to be who ever is on call, so may not be a specialist in IBD. And they are...
  8. Rebecca85

    Working in healthcare and on Imuran

    I don't work in healthcare- but I do work in childcare which is probably the second most 'germy' job out there, what with exposure to chickenpox, slapped cheek, and at least 4 different bodily fluids a day! Personally, I haven't had a problem with getting ill other than colds (which do tend to...
  9. Rebecca85

    Will my Prednisone-induced blurred vision go away?

    Why don't you try ringing NHS direct to see what they say! Might put your mind at ease a bit, or they might tell you to go to a walk in or something and get it checked straightaway, in which case you can stop worrying because you'll have an answer (if that makes sense).
  10. Rebecca85

    Will my Prednisone-induced blurred vision go away?

    Please go and see your optician. One of the possible side effects of pred is increased pressure in the eye (glaucoma). Not saying you definitely have it, but better safe than sorry!
  11. Rebecca85

    Oh my god

    Firstly, don't worry about spilling your most embarrassing secrets on the forum. It's actually pretty hard to shock us- read a few threads and most of them are about poop in one form or another! As for the fistulas, I haven't had any. But I do know that the biologicals can help to close...
  12. Rebecca85

    Is this Normal for Tappering Pred

    It often happens, but the goal is to try to taper without your symptoms coming back! Did you go straight from 50 to 40? If so, you might want to go back to 50, until you feel better again, then go to 45 then 40. But check with your doctor or nurse first!
  13. Rebecca85

    Pregnant with crohn's after misscarrage

    Ditto what he said! Your priority right now has to be getting yourself healthy, as your baby is relying on you for nourishment. By the way, I am 16 weeks pregnant :) but so far no flares.
  14. Rebecca85

    Does everyone do clear liquids the entire day before colonoscopy

    When I had a 9 am appointment, the instructions were daybefore- low res breakfast then clear fluids, prep at 5pm and 8pm, and nil by mouth from 7am of the day. If you are supposed to take prep at 1 am or some other stupid time, I would be tempted to move the whole prep forward a few hours. I...
  15. Rebecca85

    How many 20 somethings are on Disability for Crohns?

    Jenny- I know exactly what you mean! A child at our school has an agoraphobic mum, his (much older) sister brings the boy to school every day because mum can't go out. Sister is homeschooled due to mum's condition. Yet mum managed a 2 week holiday to Spain last year!
  16. Rebecca85

    Poop Question....

    I think yellow is something to do with bile or unabsorbed fats. Basically because everything passes through so quick the body doesn't absorb everything it's supposed to. Healthy people vpcan have this with a bad stomach. It's most likely your Crohn's, but I would mention it to the GI as it may...
  17. Rebecca85

    So upset and angry- Vent!

    Here's hoping you get on better in your new position! (and presumably under s different boss?)
  18. Rebecca85

    So upset and angry- Vent!

    It might be worth sitting down with your boss and explaining EXACTLY what you are going through at the moment. Even though he is aware that you are iol, he might not realise that, even when well enough to attend, you still have fatigue and pain to deal with. Sometimes people think if we're not...
  19. Rebecca85

    How do you handle it all???

    I was talking to a woman at work, and she was sympathising with my first trimester pregnancy tiredness. She said 'there's nothing quite like it, especially when you just hit that wall' So I replied 'actually, there is- I felt like that every day with Crohn's!' But at least now I have an...
  20. Rebecca85

    Croup

    Don't forget steam inhalations! Fill a bowl with boiling hot water, put your face over it and put a towel over your head to make a tent. Breathe deeply. Or get the whole family in the bathroom, turn off the fan, and fill the bath with hot water- it will do the kids the world of good with their...
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