Search results

We have had that guy every time...and every time the orders are an issue...he never smiles.....he acts like you're an inconvenience to him so I can't let so done like that put a needle in Matt. Plus weve been there at opening and he came in twice an hour late.

Okay...end of day 4....pain is gone or nearly gone.....Matt is feeling better and says he is ready to return to school...hungry and eating again...although we're not letting him eat just anything. So, knocking on wood, maybe twas a fluke after all... Thanks everyone for listening to me babble...

I should add that our son was 12 at diagnosis and our biggest concern other than his immediate health was preventing any delay in his development...puberty, growth, etc..... We hated the idea of 6mp but we also didn't want to goof around and lose any more ground than we already had in the year...

My two cents: I agree with MLP about the Pentesa...we have been advised by our GI who I find to be very knowledgeable and trustworthy...that Pentesa is NOT enough medication for Crohns. Also, he explained that when IBD presents in a child it is generally a much more severe version than when it...

What's your thoughts about missing a practice due to illness and then being prevented from the meet?

Thanks....that is the section I recalled......does he have to be evaluated at some point by the school to be considered eligible for section 504 privileges or do they automatically apply?

Anyone know what the rules are which prevent a school from penalizing a UC or Crohns kid for any issue related to their disorder? I'm trying to gear up a response to a potential issue: Here how it goes... Today, Matt missed swimming after school...this due to a gastric issue over the weekend...

You know..my wife is convinced it was a single McDonald's hamburg at 10 pm after a difficult hockey tournament.....

Well, latest update from home is he is Hungry again and stating his pain has mostly subsided......so ....crossing fingers. i could use a full nights sleep...

Awesome...we want to try LDN before getting into remicade....

Jacqui, Not meaning to hijack the thread(says the guy hijacking th thread) But how has the LDN been working out?

Kathy, I agree it is a good combination to have one calm parent and one anal retentive. Just wish I was the calm one! White blood cells we're normal but I should add the Bloodwork was about 6 or 7 days before the onset of stomach pain...I just found it odd that I noticed minor disturbing trends...

PB, I don't have a great answer to your second question, but fear not! Someone will mosey on in with a good one, however, I can tell you not to worry about feeling your issues are any less important than anyone else's. It is true, many parents here are suffering many levels of issues and...

Welcome PB72, Being semi new to this world as well we certainly aren't experts...but from all that I read I believe there is a lot more to the diet/disease correlation than the medical community lets on. I think researching your child's needs is of huge importance because at this point you are...

Ok so we are in calendar day 4 of this thing..actual day 3 by hour count. His pain is still present but less severe than the first day. Still not eating much for solids except an occasional slice of toast and maybe portion of banana. Drinking water and ginger ale regularly. He says...

We hate the upstate LAB cause the guy there is like a zombie. Also..our biggest issue is , how should I say, getting a sample. Because first he has to make one when we're available to collect it and drive it to the lab......that test always takes a few extra days!

Possibly..but the consult is Thursday so by the time we gat a sample tot he lab and get results..it may not be ready Thursday anyways

Thanks....yeah I'm assuming the calprotectin will be suggested at the next visit in a few days. It has been done twice but not as of late......

There was discussion. He mentioned remicade briefly...we aren't huge fans of walking down the remicade path just yet and we pushed LDN. He opposes LDN but did read a packet of info that may wife compiled....he agreed that he would guide us to someone who could prescribe LDN and would stay our...

Thanks Angie.....I'm hoping bug too...but no fever. I thought a bug would always come with a fever. Despite the higher SED rate, the CRP came back >.500 which is normal.....and although I've forgotten much in the last year due to better health and less research...I thought I remembered...