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  1. Dutch941

    WBC reduction goal. Of 6mp

    Our neutrophils were at 1.4. But that was a month ago before a reduction in 6 mp of 10%
  2. Dutch941

    Fecal Calprotectin test 586 what's next?

    Ok..had the Appt today...great appt. learned a lot.......dr was very patient with us. In regards to the lactoferrin test.....probably no need....my dr advised it is a negative ...positive test that simply states there is an issue....the fact that you have a 500plus result would indicate it...
  3. Dutch941

    WBC reduction goal. Of 6mp

    Thanks again dusty...brought it with me and he explained that the real concern is not so much wbc(he is content at 2.9). But more about neutrophils...which are diminished in our case bu not to the point where he is concerned ....
  4. Dutch941

    WBC reduction goal. Of 6mp

    Very helpful article! Thanks..I will reference it as a guide today at appt. that article wold suggest a need to reduce, we did, in fact reduce already but only by 10%...thank s again.
  5. Dutch941

    WBC reduction goal. Of 6mp

    Hi all..... Going to the dr today re 13 year old with severe uc(currently not inflamed) I'm concerned aBout the WBC reduction.... I know the goal of 6mp is to suppress the WBC....what I can't find ANYWHERE is acceptable limits?....how low is too low?? Does anyone know what the lowest WBC would...
  6. Dutch941

    Fecal Calprotectin test 586 what's next?

    Our GI did repeat the fecal calprotectin after about 2 months...we have appt in 2 days but I am aware that the number did go down. He also repeated the lactoferrin test? Ask your GI why he did not also do a lactoferrin test....I'll ask Wednesday what the significance of each test is ......and...
  7. Dutch941

    Fecal Calprotectin test 586 what's next?

    Oops. I should read more carefully....I didn't see that he had a physical symptom as well......thereby making his scenario different than ours. Sorry.
  8. Dutch941

    My son is 12 and recently diagnosed with crohns

    Mreyn, Welcome. So sorry to hear about your son. My son was also 12 last year when we discovered he was ill with what we now know is severe UC. It was and still is a horrible experience. But, you have found the right place to seek information and support. I see you already have often...
  9. Dutch941

    Fecal Calprotectin test 586 what's next?

    I wouldn't get overly concerned.....my son had about the same number 590....his test was done with a lactoferrin test as well....that test is negative positive ...with negative being preferred...he was positive. Our dr said 590 is not overly concerning...he stated it was a highly sensitive...
  10. Dutch941

    Article on CNN about treatments

    Unfortunately, I am of little value regarding LDN as I have no experience with it. I,like most people here, am a seeker of information. I m optimistic that LDN offers us a reliable back up plan the future. All of what i know came from Internet research and people's accounts here. I do...
  11. Dutch941

    Izzi update...

    First things first. I would put up a pic..but I'm not sure how.....it says I need add the photos URL??? If anyone knows how to get the pic from my iPad to a post ill try.... Also ..as far as being 80.....at that point who cares what the tat looks like...you'll likely have bigger concerns....and...
  12. Dutch941

    Izzi update...

    Now that I've hijacked the izzi thread...how's she feeling? I hope better. Tell her I'm going to help you guys design a tattoo!
  13. Dutch941

    Izzi update...

    So ....today I went and got my first tattoo. It is a tribute to my son, Matt, in honor of his past year and his perseverance during such a difficult time for a child. It's a flaming ring with his hockey teams logo(unfortunately the Boston Bruins logo)...over the logo is a replica of his...
  14. Dutch941

    Low Dose Naltrexone

    Just don't be skipping out on us Kev! ;)
  15. Dutch941

    The Role of Mesalamine in Crohn's Disease

    Planning to ask in a week at next appt
  16. Dutch941

    The Role of Mesalamine in Crohn's Disease

    We did metabolite tests.....remember my other post about liver enzyme issue. Hls 6tgn is 365... My concern is that it's too effective....WBC down to 2.9. Which seems too low to me..
  17. Dutch941

    The Role of Mesalamine in Crohn's Disease

    Hey David...... I ended up on this thread after you commented about the lack of studies of efficacy of pentasa.....Am I reading correctly that you speak mostly of Crohns and not UC? My reason is our case is a severe UC case affecting the entire large Intestine and assumedly nothing else. Do...
  18. Dutch941

    Low Dose Naltrexone

    Kev and azmom...I just now noted that kevs recent post was a response note...I was wondering what prompted that! I'm glad people here can express themselves so even keeled and continue this dialogue..that said i completely understand why someone might have a reaction to the term Russian...
  19. Dutch941

    Low Dose Naltrexone

    Kev, I for one thank you for you presence on this board....I put much thought into every decision we make and have used you insight to make several decisions already. I believe it was you who thought it unwise to switch from 6mp to LDN when the 6mp was currently working.....and so, I did not...
  20. Dutch941

    Article on CNN about treatments

    http://www.cnn.com/2012/08/14/health/doctors-crohns-treatment/index.html?iref=allsearch Above is addressof CNN article About new treatments for Crohns....catchy headline...but never identified any new treatments! In addition it seems to be geared towards the people suffering from this....then...
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