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Crohn's Disease Forum

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    Adults Who Were Diagnosed As Children Support Group

    Hi. I am going through at the moment, although I am at university. My post is just above yours and I was diagnosed when I was 9, I’m 21 now and doing first year as an undergraduate. Took time off which is why I started uni late. I had a relapse 3 weeks ago and was in hospital for 10 days and...
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    How do I shower with a Picc Line?

    Okay. I actually haven’t been told how to cover it, just to keep it away from water. I will do thanks
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    How do I shower with a Picc Line?

    It is in my arm. I was thinking around the same thing.
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    How do I shower with a Picc Line?

    Hi so I had another relapse and have been in hospital for a week with hydrocortisone and IV fluids. Today they put a picc line in as my veins are all damaged from the cannulas and they said it’s better for the long term with me being on treatment; although they may have to stop vedoluzimab as it...
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    Joint pain which is particularly bad in winter. Anyone have same problem?

    I’ve tried ibuprofen gel and that only helps for a short period of time. I won’t be able to use Voltaren as I am asthmatic and it does interact with it. But I will ask my consultant for other alternatives. When I mentioned about Vedoluzimab, I asked the IBD nurses and they said that joint pain...
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    Joint pain which is particularly bad in winter. Anyone have same problem?

    I did see one when I was younger and was in the children’s hospital, but she did put it down as flat feet and not related to the crohn’s. Although I do notice that only in winter that I get this pain. So it is most likely a flare up as I do usually get ill around this time and I am still...
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    Joint pain which is particularly bad in winter. Anyone have same problem?

    Thanks for the information, I will definetly mention it to my consultant when I see him next. I am on vedoluzimab, but when I asked the IBD nurses they say it’s unlikely linked to the medicine and more linked to the crohns. The pain I get is mostly stiffness in my knees and I end up limping...
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    Joint pain which is particularly bad in winter. Anyone have same problem?

    I’m still trying to get used to the site lol
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    Joint pain which is particularly bad in winter. Anyone have same problem?

    Hi. So I’m 21 and have had Crohns since I was 9 and I’ve noticed in the winter that my joints are in agony especially in the cold weather. It has been much colder with it being 1-2 degrees Celsius and I wake up in the middle night crying in pain. I have had a flare up two weeks ago and still...
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    Stoma Outout - normal?

    It could be. You might want to ask the doctor if it’s normal. But I’m pretty sure it will just be like this until it settles down
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    Stoma Outout - normal?

    It’s still early as you had surgery 2 weeks. I remember when I had my surgery and the first couple of weeks were really hard. I had a total colectomy and my stool was really loose. It’s normal as the surgeons have played with your bowel and when they do it can cause problems including paralysis...
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    There is a gap between my stoma and skin, is it serious?

    Hi. So I had a total colectomy 3 years ago and I changed my bag this morning when I noticed there was a gap between the skin and the stoma. It was bleeding quite badly and it felt slightly out of place. I have been feeling stressed these past couple of weeks and I have been feeling tired and...
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    New to the site, but had Crohn's since I was 9

    Hi. I'm new to this site and obviously to this group. I thought I'd join to meet people who are going through similar things as me. So I basically I was diagnosed with Crohn's Disesase when I was 9 (I'm 21 now). After two months of loosing 2 stone and having severe diarrhoea and refererred...
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    Adults Who Were Diagnosed As Children Support Group

    Hi. I'm new to this site and obviously to this group. I thought I'd join to meet people who are going through similar things as me. So I basically I was diagnosed with Crohn's Disesase when I was 9 (I'm 20 now). After two months of loosing 2 stone and having severe diarrhoea and refererred...
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