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Crohn's Disease Forum

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  1. C

    Mom w/4 yr. old w/ CD.

    Her scheduled appt. is for a week from tomorrow. No, they have not tested for Giardia, and that is a good point. It is a very sneaky, creepy bacteria. I cannot believe how compassionate and understanding you all are. I am in disbelief that I have found you all. I am so very grateful for...
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    Mom w/4 yr. old w/ CD.

    Ok, wow, I just realized how out of it I actually am. Stress does have a lot to do with it! She was diagnosed in 2016! Not 2017. So sorry about that. One year exactly after her colonoscopy. I am starting to agree that a look inside would be best, but do you know how awful it is to gas a...
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    Mom w/4 yr. old w/ CD.

    Tomorrow is the day we are to start the prednisone, 15mg/day. This seems like a low dosage. Do you know if it is? What is a high dosage? I am feeling a huge weight on me with this. I am so looking forward to seeing it work magic, and see the little bleeding that I have been seeing, on and...
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    Mom w/4 yr. old w/ CD.

    Thank you Maya142!! This helps. It makes me want to go to the EEN, though. It sounds a lot more tempting , with no side effects. I really don't want to use the steroid, haven't since hearing our dx( first time using this abbreviation). Strange.
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    Mom w/4 yr. old w/ CD.

    So, the laser therapy has mainly been used on animals in veterinary clinics for all kinds of different ailments. But, there is more and more evidence, that it is working to help people with pain, inflammation, and such. Look it up online. I have a local vet that is progressive and he has...
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    Mom w/4 yr. old w/ CD.

    I want my kid back, and strong, and healthy, too. I am ready and willing to try this EEN, or Remicade, if that is what it takes. This laser treatment, though, is very appealing because it is gentle, very non-invasive, and it is working for some. It apparently is basically putting infrared...
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    Success Stories

    Thank you for this place of success. It does help to read about happy, and happier endings, and livings. Especially just starting out on this long, excruciating, and harrowing road. There are many unknowns, and I can't believe how very diverse each and everyones story is. How many different...
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    Mom w/4 yr. old w/ CD.

    Thanks for all the sweet support and virtual hugs. I can still feel them through this computer. I can tell you all have felt what I have been feeling for a long time. It feels unreal to have other people who know exactly how I feel, to connect with. I really appreciate hearing about the...
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    Mom w/4 yr. old w/ CD.

    Hi there, I am so happy to hear what you have to say, and also really sad. I live in a really rural place, two hours from a town of any significant size, and so we were forced to go to San Francisco for good care....CPMC, an 8 hour car ride. I don't actually live in Arcata, but 2 hours inland...
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    Mom w/4 yr. old w/ CD.

    Hello, I am a mother of a 4 year old daughter diagnosed with Crohn's disease in October 2017. She went into the emergency room with severe anemia, and shortly there after received a blood transfusion, which helped tremendously. Then her team of gastroenteroligists prescribed methotrexate and...
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