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Daniel has been on Pentasa since DX September 2010 at age 11. He was also on Prednisone & Flagyl then too. His first 9 months were really hard as he kept getting strep throat & c-diff. But once we got through all that & got him started on a probiotic he has been much better. The only thing he...

Hi Sheryl, I haven't been able to read all that is written here. But my Daniel also has mild CD. They hit him with the same meds your Daniel is on except he took the prednisone. It took about a year with some twists to get him straightened out. He went through much as what your son is...

There is a line called Vitafusion I use but they are adult vitamins. It has a great calcium vitamin D gummy. I know they have a gummy fish oil that tastes pretty good. I am not sure what they have in the way of kids Vits. Daniel has taken them & likes them. On the bottle for the Calcium it...

Daniel was DX age 11 September 2010. I can't remember how many years of running to the bathroom after eating. But it was just several months prior he had bleeding. That started the whole process of getting to the DX.

Wonderful job taking the time to do this story & being so busy with a little one! Doubly so when they are sick too. He is such a cutie. Those blood tests are no fun! Great news piece for awareness!

Kathy, it does sound like your in another ball park so to speak. Crohns effects are so veriable & far reaching at so many different levels. Daniel is in remission so I think it does keep him there. My oldest son who also has Crohns takes Asacol (sp) which is the same med but a slower delivery...

Kathy the only spot they saw when they did his one & only top to bottom scope was about 3 inches at the end of the Ileum just before the Cecum valve. Because this was the only part of his intestines involved made it a mild case. Although the intestine was pretty sick. He also had issues with...

As you can see this is the drug Daniel has been on since his DX. I know it was a good 2 months till Daniels blood levels were down almost to normal. It was a combination of the Pentasa, Flagyl, & prednisone that help to get him there. But the only thing that he is on now is the Pentasa. I know...

Oh T can you see my million mile wide smile! Woo Whooo dancing! THATS the the way the medical people should be!!!! Dr's included!!! Not that you or I & anyone else wants something to be wrong. But ignorance is so NOT bliss if something is wrong! It's time to get the right answers & not some...

T I am glad you are back home safe & sound! Oh & so totally NORMAL! WTF! Sorry but I will be insane on your behalf!!!! She is such a syco Doc! Look I like you & everyone else hope it all comes out good! But you would not be putting your child through ALL this just for the kicks! He is not...

Good luck to Austin tomorrow! He sure is a brave one! Hang in there Mom!

Oh Dusty how wonderfully proud you must be!!!! You will make a great personal advisor!

Dex I hope you had a Fab Fathers Day! Your plans for the day brought back lots of good memories of years gone by! Thank You!

Julie I totally agree with Kathy!!! You have to write these down! "Claires humorous GI Journal"!!! I told Daniel about her quotes. Daniel likes to be the class clown & make people laugh! He totally loved her humor! Even though she probably isn't intending all we are getting out of it! That's...

Julie I am glad they have her in the hospital & are watching her closely! That Dr. seems like a keeper! Going the extra mile! Yes I know it's his job but not all Dr's are like that! It's good to here the trans perked Claire up a bit! Thanks for taking the time to keep us in the loop! Know your...

Darn it all Julie I am at a loss here girl what else is the Dr. Saying? Why the ER visit was she symptomatic or did the Dr. Call you in to be seen? How is Claire doing feeling? I am worried with you!!!! I am guessing that those are the 2 things he is worried about???? Please keep in touch here...

Thanks Mark! One less thing to worry about!

Just a pop in with some good news! All is B9 with the polyps. The stomach ones are being seen more often with long term use of Nexium. They are always B9 said the Dr. The polyp in the colon was also B9 but is the type that if left go would become cancerous 5 or more years down the road. So from...

T. remember that Mayo is open 24/7!!!! Hugs to You & Gab! Your whole family! I hope the night goes by uneventful & Gab is able to get some rest with less pain! :ghug::Karl::ghug:

Dusty you beat me to the punch! Good going! She is right they have Dr's on call! That's why the Doc's get paid big bucks! I would consider this a time you need to call the GI ASAP! Shingles is nothing to mess around with. You might even mention them bringing an infectious disease Dr. in on this...