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That's what I've read as well. You should be good.

Awesome news Cat! Excited to see how you do on it.

In addition, another forum member might have some stuff to add -- Jmrogers4 -- her son was on LDN for a bit and it was working for him for a while.

There was a guy on here named Kev who had many years of success on LDN, but then relapsed. I think he left the forum, but if I remember things correctly, it was unrelated to his illness. He was the reason I heard about LDN in the first place though! I'm like you -- low level inflammation...

Tryagain -- LDN has worked pretty well for me thus far, and my disease is also localized in the terminal ileum. That said, my case was "mild" (even though it didn't feel mild at the time) and it took me a long time to get into remission. LDN doesn't have an immediate effect for some folks, and...

I went straight in with 4.5mg. Some folks work their way up, but I just went ahead with the pills that came in the mail. :)

Hi Will! Your mileage may vary, but the sleep disturbances for me were fairly mild. More like vivid dreams, really. I also can't speak to how it will or will not affect Valium, but I take fluoxetine (more commonly knows as Prozac, which is an SSRI), and it doesn't affect things in the least...

Based on MRI and colonoscopy diagnoses, my disease is primarily (all?) in the TI, but my gastroenterologist definitely had Pentasa in mind originally because it releases higher up in the GI tract, exactly like you said. I was glad to hear that Lialda released in the TI and wasn't solely for the...

Not yet, but I certainly will! Hoping that things settle down as I get back on LDN. Honestly, I was leaning towards the antibiotics/pred one-two punch messing with my guts, so we'll see how I'm feeling once that's all out of my system. I'm glad to hear you didn't have any issues with the switch...

Howdy folks. Not feeling super great! Not terrible, by any stretch, but I'm curious about others' experiences with this. My prescription provider changed at work, and I had to go with a less expensive/covered alternative to Pentasa. I went with Lialda, and thus far I don't feel like I'm...

Again, I suggest LDN, mostly because of the low side-effect profile, but also because I feel like it might do just as much (if not more than) 5-ASA meds like Pentasa. Not sure if your gastroenterologist would go for it as it's not "standard of care," but you might be able to make your case based...

Hi BoyMom -- paging Jmrogers4. Her son Jack was on LDN around that age and did well if I remember correctly, although he is no longer taking it last I heard.

Hi Aideen, sorry that I didn't see this until now. I'm not an expert, so take this with a grain of salt, but the typical agreed-upon dosage amount for LDN is 4.5mg, once per day. I took a quick look at the Contrave website, and it looks like the naltrexone is an 8mg dose in an extended-release...

Your story seems to resonate with mine. I'm also "mild," but when I was flaring, it certainly didn't feel mild! I was overweight to begin with, but I rapidly lost 50 pounds -- something was definitely wrong. My IBD is localized at the ileum for now, and I currently have things under control. My...

I've taken short-term budesonide alongside LDN and I haven't experienced any ill effects or loss of efficacy. Like others here have said, I know that a large dose of prednisone is no good with LDN, but if you're on pred and you wean down a low dose (10mg or less, I think), it shouldn't...

Are you still taking pred?

I know that candidia (a type of yeast) can interfere with LDN, so my best guess is to not take the LDN until the infection has cleared up. At this point, it sounds like you've only just started LDN at a lower-than-maximum dose, so if I were in your shoes, I'd probably just start the LDN over...

Hi Amber -- sorry that I can't offer any insight on this. I did some research after I first read your post, and you are correct: intestinal TB and Crohn's can sometimes present in a remarkably similar way. I too have Crohn's Disease that is (thus far -- knock on wood) localized to the TI. (I...

I haven't heard of this. One of the big advantages to LDN seems to be that the side effect profile is pretty low; I've heard about vivid dreams as a mild side effect (which could certainly tie into anxiety!), but those tend to fade away as well. It's certainly possible that LDN is a factor, but...

Hi Jody -- I'm probably just echoing what others have said here, but things do get better with the right meds for lots of people. This site can also be a great resource, but try not to freak yourself out -- keep in mind that most people come here when they are in need of help, and aren't...