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We did all the protesting and are waiting for the results. The Humira is supposed to come in the mail on Tuesday. Meanwhile she started having high night fevers and bad stomach pain. I am trying to figure out if the fevers are definitely Crohn's related or if she is just getting sick. She...

I k ow this is an old thread but I am bringing it back as we are struggling with nosebleeds again. Wondering if maybe it could be from the methotrexate? She is also really struggling with migraines.

I agree with the others. His sed rate should not remain elevated for months. Either the 6MP is not working or something else is going on. Hope you get in with a rheumo quickly

Glad she is feeling better! Hopefully all is well with her.

Glad it went well! fingers crossed for good results for her!!!

That is terrible. We are also waiting all week for a call back. It is very frustrating.

We did not have a good appt today at all. My little one lost three pounds and the doctor is insisting we start Humira. She has had marked improvement in her ankle pain and has nor been complaining of stomach pain as much. I asked him if we can check one more fecal calprotrectin prior to starting...

Definitely sounds like she has something going on. I would ask for a full set of labs and make sure they check a fecal calprotrectin.

Farmwife I love this idea! This was actually one of my best Mother's Day yet. We had a really nice weekend! Hope Yours was great too!

Hi my daughter did have one for recurring CDiff. It worked great for it but did not help her Crohn's disease. I have never heard of anyone getting sepsis form it and I am a retired nurse practitioner and did a ton of research before agreeing to it. Our doctor has done a bunch of them on kids who...

We switched my daughter to the oral methotrexate and she is much happier with it.

Always nice to hear good news. I also have to agree with the others to take it slow and don't rush to lower the methotrexate. But I am really happy she is doing better!!!

We too had the same thought process when we started this journey. Our first daughter was diagnosed at age 11 and is now 19 and our younger daughter was diagnosed at age 7 and is now 8. We have tried every alternative out there. The shakes were very hard to drink my daughter dod it for six weeks...

That is great news and glad the remicade went smoothly too! Finger crossed for her!!!!

I am sorry she is having such a rough time. We are going through the same issue with weight and Caitlyn just had a G tube placed two weeks ago. It hasn't been so couple of rough days in the beginning but it is better now. She hasn't gained weight yet but the doctors are happy she hasn't lost...

MLP, But that is what they are trying to figure out and why they are testing for it.

This article discusses a new biopharma company in Israel working on some really promising drugs for Crohn's. It includes a drug that works on the MAP bacteria that is currently in clinical trials. http://www.timesofisrael.com/kibbutz-duo-turned-entrepreneurs-on-quest-to-whip-gut-bugs/

Thanks Maya!

I wanted to update on my 8 year old. It has been a few weeks on the increased dose of 5mg. Her mouth sores have healed up and her joint pain has been a lot better as well. Fingers crossed that she continues to do well and her next fecal calprotrectin is decreased.

FW, They are going to change her to a Mickey button in June the one we have now can't be changed out. She is doing mentally a lot better. We went out with it a few times.