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Maya, Thanks, I a, going to call tomorrow and ask about bactroban as it seems like the infection is coming back. The kids saw the tube as she was using it and the backpack.

I forgot to update, Caitlyn ended up in the ER while at travel camp. She had some kind of infection around the G tube. They treated her with antibiotics. She is doing better. We went to visiting day for the younger kids yesterday. My little one is doing well at camp thankfully. The nurses said...

Thanks Maya!!!

Hi Maya and FW, I am pretty sure it is granulated tissue. We had a local GI doc take a look and he agreed. We got some granlousos ointment that is supposed to help.

Glad the first two doses went well. Fingers crossed for her!!!

Hi FW, Caitlyn has the Mickey and is having a lot of issues. I am also sick as a dog. :(

Maya, Ended up being to tight. We took out some of the water and he ordered her the bigger tube which we will replace when it comes. Pain is still bad some the PA wants her to take the carafate one hour after eating and then not eat for a minim of two hours. She is also god gto do Zantac for two...

Maya, Caitlyn is having terrible pain again since he changed the G tube out. Any suggestions for this? Is it normal to have pain with the change from one to the other.

Caitlyn had an endoscopy today to replace the G tube for a Mickey button. The doctor saw her stomach about an inch and a half above the G tube was very inflamed and ulcerated. He was very surprised by this. He said it looks like someone who has been taking to much aspirin or NSAID's (neither of...

Welcome. I am so sorry you are going through this. It is not easy. I have 2 girls with crohn's one diagnosed at age 11 who is now 19 and one who is 8 diagnosed last year at age 7.

I am so sorry. It is not easy. My daughter was age 11 when she was diagnosed it took her quite a while to adjust. Like some of the others said an experienced therapist makes a big difference. My daughter saw an art therapist for a year which really helped.

Very glad to hear it is helping and so quickly too!!! That is awful about the Cushing syndrome. I hope it resolves quickly.

A friend got her a buzzy! She sent it as a surprise to us today! Hoping it helps with the next dose.

Maya, It was worse this time. Hoping we can get the buzzy soon.

Extra shot given. My poor baby. I am so angry!!!!

Second Stelara done. Fingers crossed!!!

Thanks MLP!

Maya and MLP, She weighs 51 pounds. So 20 mg maintenance looks correct for her.

I am so angry I am shaking. Caitlyn has been having very bloody stools again so I had a call into her doctor for the past few days to see if we could give her the second Stelara a week early. He finally called me back. His nurse once again did not give him the message(that is not what my anger...

Prayers that this passes quickly!!!!