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Maya, We did not get the pen. We had a terrible experience with it with Caitlyn. We got the syringe. We are doing little presents for a reward for her. I will ask the company about the mini buzzy

We are seven weeks out from the initial infusion and my daughter is not doing well at all. Did everyone's doctor wait 8 weeks between loading dose and the next dose? It just seems like such a long time in between. Dude007, My daughter is allergic to remicade, Humira, and cimzia, I was very...

MLP, It was rough. She cried and cried after. I don't think the little shot distraction device helped. I am applying for a scholarship to her a buzzy. I will let everyone know how it goes if we get it. She seemed okay today. Tonight she had bad tummy pain again.

Humira came today. Any other tips for giving it?

I tried a bunch of different ones she won't drink any.

Still no humira. Was on the phone for an hour with the pharmacy again yesterday. They swore it will be here by tomorrow. We will see. In the meanwhile can you guys recommend any homemade smoothies/shakes recipes?

MLP, I really hope so. She has been sleeping a ton.

Maya, She is mildly anemic not to the point that I would think it is causing this extreme fatigue . I googled it and it seems like it may be a rare side effect.

My little one is having severe fatigue since starting the prednisone. Caitlyn always gets very energetic from it. Just wondering how others kids do with it. The Humira still didn't arrive.

I am so sorry to hear about your little one's diagnosis. Itmis so hard when they are so young. We have several forum members whose kids were diagnosed quite young. I will try and tag them. As to having another child with Crohn's the majority of families who have multiple kids don't seem to have...

Thanks Jenn, Interesting about the antihistamine as I happened to read a journal article last week that migraines in IBD are triggered by inflammation and that histamine may contribute to them so I started her on OTC Claritin and she has not been complaining as much.

Maya, We flavored it with strawberry and we pour it in grape juice and she has been okay with it.

Glad to hear it is going well. Fingers crossed that this is her magic bullet.

Maya, She is a mess. The prednisone is making her so crazy. Her stomach is still hurting and everything is tasting gross to her or smelling terrible.

MLP, It is from a specialty pharmacy but they called us last week and set up the date of delivery.

I am so upset. The Humira didn't come. It wasn't even sent out yet from the pharmacy. It was out of stock and they had to order it and they didn't think to even call us and tell us!!!

Ended up having to take my little one to the ER for severe stomach pain. Her CRP and Sed rate were both elevated and her iron low. She is in a full blown flare up. Her first. They gave her a dose of IV steroids and sent her home on steroids by mouth. Hopefully the Humira will arrive in a few...

I ordered the shot blocker. Hoping it helps. I figure it is a lot cheaper then buzzy and if it doesn't work then we can get the buzzy.

Thanks! I never heard that before.

Thanks MLP, I asked about the lidocaine and our doctor said absolutely not as it can cause arrhythmia's if you accidentally hit a vein with the needle. Even though I am a retired nurse he still wouldn't do it. Buzzy bee is a good idea. I think I am going to order it.