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  1. dreamintwilight

    Immunosupression and Covid Vaccine Response

    It's probably best to send a message to your doc to confirm if they want you to make any adjustments to your meds in terms of vaccine timing. However, my doc didn't think any adjustments were needed to my medicines. I take Humira weekly and daily azathioprine (another thiopurine). Both times I...
  2. dreamintwilight

    Immunosupression and Covid Vaccine Response

    Good luck Lynda Lynda! I’m getting my second dose on April 19th, so I’ll send some positive thoughts your way that morning! :giggle:
  3. dreamintwilight

    Immunosupression and Covid Vaccine Response

    That’s actually quite reassuring to hear, especially coming from someone else on weekly Humira shots! I was beginning to worry my minor side effects from the first shot was because I took my Humira the day after my first COVID shot. o_O Your Humira/COVID vaccine timing is very similar to mine as...
  4. dreamintwilight

    Immunosupression and Covid Vaccine Response

    Lucky - I’m also on weekly Humira with daily azathioprine and am curious if your GI recommended making any adjustments to the timing of your meds with your COVID vaccinations. All my doc said was to get it as soon as I could when I talked with her last Fall. I know there is not much research...
  5. dreamintwilight

    Lasik eye surgery

    Wow, Lucky! Thanks for sharing your experience! I am on weekly Humira shots w/ azathioprine too and have been wondering about lasik. Like you, I found it difficult to find any helpful info online about people on immunosuppressive meds being eligible for the procedure or not. This is...
  6. dreamintwilight

    Accredo Problems

    I am currently on Accredo and had issues when I first switched to them. Unfortunately, I didn't have any other options for speciality pharmacies :( Things eventually sorted themselves out, but it was a nightmare at the beginning. What I have learned over the years dealing with crappy customer...
  7. dreamintwilight

    Getting out of ACCREDO

    Just wanted to give my 2 cents regarding Accredo! When I started Humira5 years ago, I was under a different insurance plan and used Diplomat Pharmacy, which was AMAZING! Never had any issues and always paid a $2 co-pay with the Humira Protection Plan. I briefly switched to a different insurance...
  8. dreamintwilight

    Cod Liver Oil for Crohn's Disease - A Warning

    I know that this thread is more than 2 years old, but there are some updated articles out there now including a response from Sally Fallon, president of the Weston A. Price Foundation, addressing the warnings about cod liver oil and vitamin A toxicity, in case anyone was interested...
  9. dreamintwilight

    Hair Loss

    I am currently on weekly Humira shots plus 125mg of Imuran daily (been on this combo for almost 4 years) and I started noticing more hair falling out around 2013, perhaps due to an increase in Imuran. I switched to an all-natural shampoo...
  10. dreamintwilight

    Can medication affect your smear test

    Hey Amanda! Have you had your colpo done? How did it go? I just got back from getting my pap smear redone and I asked me doc this time what happens if it comes back with the same results (ASCUS, but negative for HPV). She said I would have to get a colposcopy done. That didn't make me too...
  11. dreamintwilight

    Abnormal Pap Smear...

    I realize I never popped in for an update on whether I had HPV or not based on my last post. Turns out the PA that gave me the results of my colposcopy and told me I was positive for HPV misspoke. When I saw my gyno at the 6 month follow-up after my colpo, so rolled her eyes when I told her...
  12. dreamintwilight

    Can medication affect your smear test

    Well, just heard results back from my latest pap test. No surprise...ASCUS results again. So, looks like I'll be headed to my gyno around Christmastime. Rats! Amanda89 - I guess you will have had your follow-up the month before mine, based on the date of your original post here. Let us know how...
  13. dreamintwilight

    Weekly injections

    Hi Lam123 :) I have been on weekly Humira for about 4 years now. I was initially on the regular every other week dosage after I was diagnosed in 2010, but ended up back in the hospital 2 months later for a partial bowel obstruction. So, that's when they upped me to weekly shots and also added...
  14. dreamintwilight

    Can medication affect your smear test

    I absolutely think medications can alter pap results. Ever since my dosage of azathioprine increased above 75mg (I'm now up to 125mg daily), I've had "atypical squamous cells of undetermined significance" results. Also known as ASCUS). The first time I received that result, I totally freaked...
  15. dreamintwilight

    Bad teeth??

    Interesting! Thanks PsychoJane for the suggestion. I saw an article on Dr. Mercola's website as well in favor of theobromine. So, I may have to check that out. :) Though i can't decide if I want to at least wait until my next dental check up (in June) to see if the high fluoride toothpaste...
  16. dreamintwilight

    Oral contraceptive and Crohn meds

    I've been on the patch ever since I was diagnosed in 2010. I was worried about not properly absorbing the pill (which I was on before being diagnosed), so I wanted something else. I had tried the NuvaRing previously and could never get it inserted properly as much as I tried to push it. It would...
  17. dreamintwilight

    Bad teeth??

    Ironically enough, I just moved and finally was able to see my new dentist on Wednesday. Apparently my teeth are in bad shape and he prescribed me the high fluoride toothpaste (which I am just about to head out to go fill). Last year I went to the dentist after going 4 years without any...
  18. dreamintwilight

    Has Anyone Been Told That They Have Refractory Crohn’s disease of the Vulva? Or Might This be a Medication Side Effect?

    Ooops, well I was sure unhelpful. Haha. I'm glad to hear it was just a side effect of a medication though! :)
  19. dreamintwilight

    LASIK while on immunomodulators/anti-TNF meds

    That's very encouraging to hear! I am on both Humira and azathioprine and wondered if I would ever be considered a candidate for the procedure. I suppose if a doctor tells me that I am not a candidate then it may be because they don't feel comfortable performing the procedure. In that case, I...
  20. dreamintwilight

    LASIK while on immunomodulators/anti-TNF meds

    Hi all, I was just curious if anyone on here has been on immune-suppressing and/or anti-TNF medications and had LASIK or some other laser eye surgery done to improve your vision. I've often wondered if a doctor would even approve a patient to have the procedure done if they were on medications...
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