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Crohn's Disease Forum

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  1. dreamintwilight

    Mini-vents

    Haha, I was thinking the same thing, Mark! Sounds like a lot of fun though :) Hope you get to go to everything you want without wearing yourself out too much!
  2. dreamintwilight

    Couch to 5k

    Didn't get a chance to go running yesterday because the super glue didn't end up working. We decided to go to the running store down the street from our house today and we both ended up getting ASICS! Woohoo! Can't wait to run in them later, weather permitting! :)
  3. dreamintwilight

    Mini-vents

    Couldn't go running today like we had planned. The sole of one of my shoes was starting to flop off (they're pretty old shoes), so we tried super gluing it back on temporarily. But, not even 5 minutes out the door the sole flopped off again. So, tomorrow we're going to the running store and...
  4. dreamintwilight

    My story i may have crohn's also i just joined

    Hey Leah. Hope the doctor called you back yesterday and gave you some answers as to what to do. Hope you're doing alright. Check in when you can. :)
  5. dreamintwilight

    I am losing weight my weight is down to 128

    :( I'm glad you called your doctor! Hope it's nothing too serious. Take care of yourself!
  6. dreamintwilight

    Couch to 5k

    I forgot to mention...at the end of my run I noticed a funny feeling on the bottom of my shoe. I thought I had stepped in something. Turned out, the sole of my shoe was falling off and flopping around! Great...I may have to bust out the super glue. We just laid down a good chunk of money on our...
  7. dreamintwilight

    I am losing weight my weight is down to 128

    Definitely keep a close eye on those sounds and pain. I described something exactly like what you describe when I had a partial obstruction! If it gets worse or you start vomiting and/or have a fever, head to the ER immediately! I hope you reg. doc can get you in to see a GI very soon. It...
  8. dreamintwilight

    I'm usually not into self-pity, but....

    I don't know if they had it back then when you were on Humira, but they do have a Patient Assistance Card that should make your co-pay at most like $5. Last year I paid $2, this year it went up a little for me and I pay $3.25. Still great! Just something to keep in mind if you ever wanted to go...
  9. dreamintwilight

    I'm Giving the Forums Another Go...

    Great to have you back! :) Glad to hear that things seem to be better than they had been for you. I think I have heard of Remicade being given a bit earlier than every 8 weeks. Someone correct me if I am wrong. Maybe you could ask your doctor about trying that, if it's possible. :) Anyway...
  10. dreamintwilight

    I'm usually not into self-pity, but....

    SarahAnne - Have you tried any other medications and/or drug combinations besides Remicade? Perhaps you need a stronger dose of meds than just the 8 weeks of Remi. I've heard many people have success when switching from Remicade to Humira. There is also the option of getting Humira shots every...
  11. dreamintwilight

    I am losing weight my weight is down to 128

    Have you tried any protein replacement drinks? May not work if you have a lactose intolerance, but if not they might help get some calories into your body without your guts having to do all that work digesting. Boost, Ensure, Carnation Instant Breakfast are all good brands to try. Are you also...
  12. dreamintwilight

    Couch to 5k

    Today was Day 4 for us! We actually repeated Week 1 and will start Week 2 on Sunday. Today I FINALLY felt like my breathing was controlled the whole time. This time I tied a wet handkerchief around my neck while I ran to help me cool if (since I don't sweat!). I don't know if it was the combo of...
  13. dreamintwilight

    Mini-vents

    We're pretty sure we're going to go with trupanion insurance (trupanion.com). I'm pretty sure it is only for cats and dogs, but you could check it out to compare prices for other insurance plans, if you want. I've heard a lot of negative reviews about ASPCA and VPI pet insurance. I think they...
  14. dreamintwilight

    Mini-vents

    CHLOE IS HOME!!! The vet called this morning and said she still didn't eat last night after giving her the appetite stimulant. So, this morning they gave her a different kind and she ate!! So, they said she was ready to go back home and we just brought her home. She is still very weak, but...
  15. dreamintwilight

    What are you eating right now?

    About to eat skillet peach and blueberry cobbler!!
  16. dreamintwilight

    Mini-vents

    Update on Chloe: Still not eating on her own, though she was perkier today than she has been. No vomiting for the past 2 days though it could be due to the antibiotics working or the fact that she hasn't eaten anything. They're giving her an appetite stimulant today and will watch to see if it...
  17. dreamintwilight

    Mini-vents

    I keep trying to reply to this thread and it's telling me my session has timed out. 3rd time is a charm?? Aha! It worked. :) Okay, time to type this all out again. Samantha - Thank you for sharing your story. :) Glad Bean ended up being alright in the end. I would have reacted the same way you...
  18. dreamintwilight

    Diagnosed and Undiagnosed :o/

    Yeah, the disease can be pretty unpredictable! Glad things seem to be going well and you have a doctor you can trust. :) Hope your health continues to improve!
  19. dreamintwilight

    Diagnosed and Undiagnosed :o/

    Hi bbarnes79! I am hoping your doctor is right about it not being Crohn's possibly, but diarrhea certaintly isn't a requirement of having the disease. I do not experience diarrhea and in fact, many people with Crohn's experience constipation more than diarrhea. So, sometimes it's not always...
  20. dreamintwilight

    My story

    Hi Aubrey! You've certainly been through quite a handful to get where you are now. Sorry to hear that the medical professionals that were suppoed to be treating you and helping you recover did not act professionally and actually made your experience worse than if they had been compassionate and...
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