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Thanks for all the input/info!! We heard from CHOP today and we are going to wait and see if the increase in Humira helps. Maybe heading to CHOP for a visit in the spring! Thanks again for all the help!!

The doc hasn’t done one since he was first diagnosed last year.. I really don’t understand it, he hasn’t had any active symptoms since he was first diagnosed and put on prednisone for about a month while starting biologics.. He rejected the Remicade and that’s how we got to the Humira.. Thanks...

I forgot to add his SED rate was 5

She said since it hasn’t improved since last years MRE it has scarred. We are waiting on a second opinion from CHOP

Hope everyone is doing well! Update: The Humira seems to working ok. We just got bloodwork back and his Humira level was a little low 2.9 and his antibody level was around 130 so we are increasing to 40 mg every week instead of every other week.. All his other bloodwork came back great...

My little penguin- We will definitely check on the sharp program once we get the approval from insurance!! Thanks for info!! Lizzyg- thanks for well wishes and glad your daughter is doing great!!! Hopefully, we will have the same results!!

My wife talked about getting one of those containers for the needles. Is that what you are talking about?

Thanks!! Do you know if they offer assistance like Remicade did?

Talked with Doc yesterday and we are on to Humira... Hopefully he won’t reject this one..

Thanks for positive info!! Our son also has some allergies as well. ( nuts, eggs, pollen and a few others). Hopefully he will have the same results as your son!! We really appreciate you always responding back!!! Hope all is well with y’all!! Thanks again!!

We just got a voicemail from the doctors office. Our doctor is out, so another doctor looked at his labs and said that we will have to find a new medicine, that his body is rejecting the Remicade. Does this mean he will reject all biologics? Thanks

Thanks guys for the info!! Hope your kids are doing great!! Do they have to stay on the methotrexate?

Hey guys! Hope everyone is doing well!! It’s been a few months since we posted. Our son started the Remicade loading phase in he middle of December.Got his 2nd dose at the end of December and his last at the end of January. Just took him back for his 8 week infusion last Friday and just got...

Ok.. thanks!!!

Thank you for sharing the positives with us!!! I’ve shared them with my wife and plan on showing them to my son after school!!! It has helped us feel somewhat better about the path forward!!!! Are there any forums for the teens so they can talk to others that are going through the same...

Thank you for sharing that with us!!!! Like I told Jo-mom, it’s nice to hear the positives! Nice to hear how well your daughter is doing!!! Thanks!!!

Thank you for your encouragement... my wife is on a different forum and has seen a lot of negative stuff... It’s nice to hear the positives!!! We are glad to hear your son is doing well!!! Thanks again!!

So we got approved for Remicade and he gets his first infusion Dec.16th and the on the 30th and then January 29th. After that he goes every 8 weeks. Our son and us are getting nervous and scared about this treatment and the possible negative effects it could cause.. Starting to wonder if we...

Thank you for the encouragement!!! So glad your daughter is doing great!!!!

Thanks again for all the info! Our son also has some food allergies (nuts and eggs) but on his last check they seem to have decreased a good bit.. Hopefully he will start gaining some weight soon! Glad your son is doing well!!! I’ll let you know what the insurance company tells us..