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thanks paul and 2357

Has anyone gone for Ritalin or Adderall to help the fatigue? I am so tired of having no energy. I eat well, sleep well, exercise - but just have no get up and go….i need something. Please help

http://mrescombe.blogspot.com.au This is written by a good friend who has Crohns. He now has a bag. Very very well written and good advice for anyone with Crohn's.

i struggle with this BIG TIME. especially since we had kids…my god, so tired - all the time. I have resorted to eating caffeine tablets mid morning and later afternoon, just to get by. If i drink coffee it messes with me, but the caffeine tablets not so much. I wish there was a 'proton energy...

have a read of this….it is brilliant. titled 'dont listen to your doctor' and written by a CROHNIE. http://mrescombe.blogspot.com.au

rose, they are just horrible those fissures, especially if you have bloody crohns and need to be on the loo a lot….just awful! I had one, it lasted a year. the best thing for me was using rectogesic wipes to wipe my bum, instead of rectogesic cream…those wipes really helped. The rectogesic...

good luck claire! HEY< i write from a place of hindsight…when i was 18 i was desperate and again when i was 25, then again aged 30…i wouldnt have minded what they did, i was just so sick i didnt care about anything…..thankfully, that has changed now i am 39 and have two beautiful kids. SO, hold...

let us know the results of the MRI scan Claire...

hey claire, i took entocort for years…like 8 years….had to get off it because it was thinning my bones. It worked for those years, but i still had crappy days and still have crappy days now, on infliximab…i think having crappy days is, quite simply, par for the course with Crohns. The only time...

thanks everyone for your support/comments. I am starting Questran and hope it helps. It is great that there are drugs and things you can take that might help these sort of side effects of crohns. Feeling pretty weary though after 5 weeks of 'toilet time'…the fatigue is so depressing. cheers

Can anyone offer advice here. I have had 3 x resections and now been on infliximab for 8 years and it works for me….I was fine until recently when the gallbladder had to be removed. Since then the D has gone from 2-3 times in the morning to 5-6 times and it is really wearing me down. I am not...

There was an interesting thing on the radio in Australia today talking about how living with more trees around you shows a significant correlation to getting diseases or not. The study of over 250, 000 people showed the more trees the better the health. It also showed incresed health with...

I think it comes down to how bad the side effect is. I get some side effects, but they only last three or four days, so it is worth it. Does the itch last weeks and weeks?

it worked, in as much as it suppressed they symptoms….but it definitely is not a long term therapy…..it thins your bones, amoung other things….changes your mood/personality….not cool.

sounds awful Jude you poor darling. I would try the enteral type diet…..mostly liquid diet, low fibre and keep the pain management drugs under control…….take some time off life. good luck.

i went through this too…..bloating. was on entocort for years. the bloating seemed to come and go, but when it was bad, felt like i had a balloon of air inside me and was pretty uncomfortable. Would take dozens of huge farts to clear it, i would drink coffee to clear it and never drank coffee at...

everyone is different. for me, i was so sick that life wasnt worth living, so the risk of getting something worse was not really an issue when i started Remicade…and thankfully, it made me well and I still take it, ten years later. If i wasnt that sick, i proabably would have tried other things...

my iron levels are fine, b12 fine and i dont have any antibodies to remicade, but i am fatigued…….i think it might just be par for the course, for people with crohns???

having 'the *****' literally and figuratively speaking….i find the more i can be grateful the better the crohns is. I strive to be less grumpy and moreso i try not to 'give a ****'.

they really are a horrible thing these fissures. Mine took 9 months to get rid of. Such a nasty thing to have, when you have to go to the toilet all the time and every time it hurts…a lot! if you were only going to the loo once a day, that would be bad enough! The best advice i can give is...