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I was 50kg and had 3 resections of the gut by the time i was 27 years old….i started remicade and it got me well again. I am still on it now, ten years later!

Yeah i know, you feel like crap and are not grateful for anything because your life is one giat drag. … we all 'get' that. We all go through that - often. BUT When you have that feeling of gratitude and being grateful - for me, it makes my tummy feel good. As opposed to sitting here...

Dr. Leonard Coldwell sounds like he is pretty interesting….

depending on what country you are in, there is a blood test you can have…a new one, that can test for antibodies….I had it done TODAY, in Australia….before my infusion of Remicade…….i guess, ask your GI, i have no idea what the test is called, but i had it done today - 10ml of blood off to the...

great to hear! Borody is one of the best - open minded and trying for a CURE. Keep us posted on how you go…..

nice! I have heard of that happening before, like the crohns can just disappear overnight…….the triple IV antibiotics must be working. Is that anti map antibiotic prescription you are taking? good luck

Imuran is an immune suppresant, they use it for lots of diseases…Imuran, 6MP and Methotrexate are all immune suppresant drugs that have had a fair success with Crohns. lately they are having a lot of success with biologic drugs like Remicade and Humira.

hi D, Sorry to hear you have Crohns. I am 39, got it when i was 18. Best advice is to try and enjoy your food - try not to blame the food…or yourself. Everyone with Crohns is different. You might thrive on bananas and someone else with crohns might not be able to tolerate them. You might thrive...

very interesting. so many things happening out there in the science world - with crohns. exciting!

you might think you are dependent on the budesonide or as they call in australia 'entocort'……..but you might not be. That is how it turned out for me. It is addictive, your body needs it and when you cease it, your body freaks out…….if you stopped taking it suddenly, just ceased it - you would...

i felt the same…until i had a bone density test……… highly suggest getting one, if you have been on it for ten years.

good luck Nancye50 hopefully the surgery makes you feel better. i think most crohnies have surgery after they have explored all the other avenues. i have had 3 surgeries, all around the terminal iliuem. The first one worked so well, i went from feeling like absolute rubbish to feeling halfway...

hey poop i was on entocort for years…..years and years. took me 2 years to get off it. it was really hard to stop. i have written about it several times on here, wish i copied and pasted it so i could send to you……..long story short, when you get off it the symptoms will feel like they are...

same happened to me in 1994, when i was diagnosed. the doctor threw his hands in the air and said (i will never forget it) 'your son is either a drug addict, has mental problems or is gay'. Brisbane, Australia. My dad was clever enough to tell the GP to get knicked. We went to a gastro the...

i agree - this forum is great. I am from Australia and was stoked when i found it and could relate to others. In real life, having someone to email, phone or actually (i know this sounds quite 1990s) but actually catch up with face to face and talk - means a lot to me. Then you dont have to...

how are you going getting off the prednisone?? it took me 18 months to get off it. I was on it for 8 years. every day. no good!!!

No one in your family will understand, unless they too have Crohns. Doctors try to understand, but not many people have a nice understanding doctor. You dont want to talk to your wife/husband about it, it is disgusting. You dont want to talk to your best friends, they wont understand. SO, who...

it is hard to find a good doctor….mine retired recently and i have a new one now and he isnt as good as the old one. Evie - i think we all grapple with this kind of thing. Being ten years in and just having moments where you are OVER it….fed up, exhausted with battling it all the time for no...

mate that is great to hear! Well done YOU!!!! This is a mysterious illness and if you are feeling well, playing football and enjoying life - keep doing whatever it is you are doing. It is aint broke, dont fix it. Surgery is like a last resort i reckon….like a life saving thing. Your Crohns...

Hi David, I live in a nice small town and nice eggs everywhere….i still eat them and get problems! Wondering if there is another way to cook them…..my wife poaches them……….man do i miss eating eggs!!!