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  1. L

    Modulen help?

    thank you too much spooky1 for your warm words which was a good support for me , and really am proud of you and am sure these tough days you faced created from you an unique person and successful one and wish u always keep up , for my son i hope he will depreciate that one day . clash i found...
  2. L

    Modulen help?

    i hope both of u to be always fine, his doctor told me leave it just tell him to think and am sure he will fix his diet alone and told me may be liquid diet help to reduce it , but am feeling doubt , how we can know that he is in remission? my son happy in sheffield its really nice m he is in...
  3. L

    Modulen help?

    yes dear he is taking proton pump inhibitor since one year now on daily basis please send me this article if you find it , i think will repeat the test in 2 months when he come back as he is travelling back on sunday. as i was thinking to repeat it on saturday but dont know if that correct
  4. L

    Modulen help?

    last crp done 2 months before when calprotectin was 218 CRP and ESR both was so normal
  5. L

    Modulen help?

    hi spooky 1 and clash , hope u r fine , merry christmas for you hope you enjoyed your holidays. am living in dubai and abu dhabi in UAE , my son if free from symptoms since more than one year now , while he is in sheffield he is eating all kind of food, and once he is here in vacation i did the...
  6. L

    Modulen help?

    hi, happy new year for all of you, long back i didnot post anything my son travelled to uk for university with calprotectin level of 218 and he came here again in Christmas break and he was eating there everything except deep fried , he has no symptoms and i did for him calprotectin test before...
  7. L

    Modulen help?

    Thank U really for this warm words and for sharing your info with me
  8. L

    Modulen help?

    its 228 today am really dont know now is calprotectin flocculating that fast ?? anyone have an idea
  9. L

    Modulen help?

    hi spooky1, thank u for yr comment , he is travelling to sheffield in 4 days, his doctor saif by phone that there is a mild inflammation and want to see him before traveling for advises and today evening we will see him and told us to repeat calprotectin before meeting him, the surprise that we...
  10. L

    Modulen help?

    hi , sppoky1 thank u he did today MRI and just received the report and it saif mild spleenomegaly dont know is that serious am so worried waiting for the doctor this is exactly what they wrote : Spastic collapsed short segment of the terminal ileum measuring about 2.6 cm in length with mild...
  11. L

    Modulen help?

    warm thanks for all this info
  12. L

    Modulen help?

    is humira reduced the calprotectin ? did he reach remission ? as also am afraid from side effects of biologic !! add to that what after that if we started biologic so early , am really so confused from this strange disease who spoiled our life
  13. L

    Modulen help?

    thank u clash for fast reply. but my son hates injection and refuse to take biologic , so dont know what the doctor will decide, did your son tried biologic? is there any better result with this grp of medicines?
  14. L

    Modulen help?

    Am here again after summer vacation with my son , he did great in his exams and got an offer in the university of sheffield to study engineering.we did 80 % of reintroduction of food and remaining few to test and there was no any reaction to any and he is stable with no any symptoms, but today...
  15. L

    Modulen help?

    hi all, today calprotectin of my son is 371 so upset , this is after 5 days of removing entocort 3mg , the doctor said we will not return entocort as he is using it for 9 months and its enough for his health and growth he is thinking to increase imuran again from 100 to 150 mg daily and...
  16. L

    Modulen help?

    thank you for your wishes , I read today in prof john hunter that reintroduction of food should be in specific order and bread is still so far , and we will start shortly with egg
  17. L

    Modulen help?

    hi all , how are u clash and spooky 1 my son did the fecal calprotectin yesterday done and it was 115 we were so happy and the doctor want us to start remove entocort so for 10 days now he will take it every other day then stop it and see and during that we will start food introduction , and my...
  18. L

    Modulen help?

    THANK YOU SPOOKY1 , I really appreciate your nice wording and feeling. He is in pure modulen since 3 days now as he is in the middle of A level exams and very hard exams coming in the next 6 days , then we will do fecal calprotectin and see as last reading on 30 of april day before we started...
  19. L

    Modulen help?

    Dear Clash, He is taking imuran 50 mg since end of october and raised too 100 mg in january end of 2015 and ento cort since sept.2014. his blood work before has high esr and CRP as the calprotectin up and once down both before also come down and as I told you we are not allowed to do FC now as...
  20. L

    Modulen help?

    Dear Clash, Thanks for sharing with me all the info you have, actually my son is on imuran 100 mg and entocort 3mg and pentasa 2 gm, and while he is on lofflex he is fine without symptoms and this is the first dinner as buffet he experience diarrhea after 2 days , first time outside he eat...
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