Search results

I live in Georgia- but really I will go anywhere. and how do you get a second opinion from a CRS? I know you can see the setons from the outside- my CRS always checks from the outside. But to really see don't you need an exam under anesthesia? How do you do that when you're just getting a...

And I know there are people on here who have had fistulas heal with LDN, SCD, etc (and I'm on both of those)- but how frequent is that? Is it pretty standard that people who remain in remission get healed fistulas no matter what their method of obtaining remission is? Or is that a rarity?

I'm confused about what actually heals a fistula. So many people and doctors say biologics are best. But then other people say that it really just comes down to keeping the inflammation down so they can heal on their own. The inflammation theory makes the most sense to me. Its not like...

And when you say pass through you- like a lot of stuff? And do you have to use the bathroom and is it controllable? Or is it leakage like with the setons?

@dgg thanks for sharing your story! I know the ileostomy is considered the last resort and that the doctors want to kind of "try everything first." But for how long? Like am I just going to go through every Biologic drugs until each one doesn't work or stops working and causes all these side...

Good to know I'm not alone in this- but I'm sorry you all struggle with it too! This morning I ate a tiny snack when I woke up and then just rested and didn't eat for another hour or two and I was able to get through without the second bathroom trip! My day has been much less painful because of...

My last full blown flare was in March of last year and it left me with a huge fistula/abscess problem. I now have four setons that drain. Going to the bathroom is always a trigger for the fistula getting worse so if I can keep my bathroom trips fairly normal I can tell things are beginning to...

But can those procedures be performed on Crohns patients?

I had always thought they wouldn't do any other surgical procedures for fistulas if you had crohns? I have four setons. Is there another type of surgery they can do?

The reason I feel that the pain is very much related to drainage is because going to the bathroom always makes it worse and it always drains a lot more after it has been hurting if that makes sense. It seems to go through cycles of inflammation, pain, and then drainage. Also, there have been...

And to clarify- you are talking about a temporary ileo right? A permanent one with removal and everything WOULD get rid of the pain right?

I'm just confused as to why the pain will still exist? If there is nothing passing through how can the fistula drain? Mine always drains more if I've gone to the bathroom a lot so it just seems like if I wasn't going to the bathroom it would get better. And I know everyone says to make an...

I've posted quite a bit lately about my fistula. I've had it for almost a year now- the dr said it was one of the worst she's ever seen. I have four setons. My GI symptoms are minimal but I'm in constant pain from the fistula almost all the time. I've been on SCD for forever it seems with no...

I got two setons for an abscess in April of last year. They kept getting all blocked up and not draining properly so they had to put in two new setons. So now I have four. They don't get backed up too badly but they basically always hurt a little bit and if I have a day where I go to the...

I just posted about another side effect but figured I should keep the threads separate. I have had two loading doses of Humira for my fistulas. I am very prone to nightmares-- stress, etc can cause them so I'm not surprised when I have a nightmare here and there. But I'm literally having a very...

I just started Humira after developing antibodies to Remicade. I have had two doses (the two loading doses) and I'm starting to get some psoriasis patches on my fingers. When I was on Remicade (I was only on it a few months) I started getting patches on my fingers and legs. My dad has psoriasis...

@cit I just contacted one in my area. Thanks for the info! @Ladyorganic, so sorry to hear you haven't had results either! I just started turmeric too. Hope we can both get some results eventually!

I'm also taking LDN and even trying this new alternative treatment called LDA. I also do acupuncture! And just started Humira :( I don't know why nothing is working!

Yeah I saw no improvement on SCD and I wasn't cheating. Non homogenized organic low pasteurized milk

No I don't have access to raw milk and I know it's super nutritious but it makes me nervous with the Humira and everything. I actually take that cod liver oil/butter oil! That's really interesting about the suppositories- so they help the actual fistula? Where did you get the idea? When you...