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Just breathe- so comforting to hear! Haha I'm the same way I'm always telling my husband to scoot over so nothing touches me! So yours started getting better after 3/4 weeks? And no, I didn't have the fistula during pregnancy or birth. I actually was in totally remission during pregnancy- no...

Oh and also- just to get an idea- what kind of pain did you all experience in the first few weeks? I know a lot of pain but just want to make sure my "a lot of pain" is normal. I can't walk without pretty bad pain, can't sit. Can only lay on my stomach or side and then I will have moderate pain...

So funny about the bananas. I was worried about worms too! Yeah I probably should start writing down the pattern- it's just hard because there are so many different factors!

Another thing- it seems you all have found a pattern to your seton pain. I can't seem to find any sort of pattern except that it's always worse at night and the morning. Regardless of food or when I use the bathroom. It's just always terrible at night and in the morning. Do any of you experience...

Justbreathe- I DO!! So many haha! They've been my go to food lately and so that makes so much sense about the threads! That's crazy but makes sense!

Polar bear- don't worry about ambushing! I know I can seriously can use all the seton thoughts and experiences and advice I can get! In terms of my drainage (I've only had mine two weeks) I get constant yellow mixed with blood. I also get pieces of stool. And also these weird little black thread...

Justbreathe- you mentioned a pic line- I realized I really didn't have much pain while in the hospital after the surgery when I was on IV antibiotics. It was when I went home and was on the oral antibiotics that I've had more pain. Makes me wonder if the oral antibiotics aren't cutting the...

I will! Hoping to get some relief soon!

TheOcean- I haven't had anyone checking it- which has surprised me! I'm going to call and make an appointment to get it looked at tomorrow. The pain is definitely worse now so I'm thinking maybe the skin is infected or at least something is not right. Hopefully I get an answer! An MRI sounds...

Back with another question! I paged my doctor about these too so waiting to hear back. It seems the pain has gotten a bit worse. It is like a steady throb and I can still feel the spot deep where the abscess was/is. It feels a little warm. But I also think it always has the whole time- I'm not...

That makes sense about it getting stuck. I guess it just weirded me out that it comes out hours later but maybe it just takes awhile for my body to push it out!

Also it stings when it drains the stool! Did you all experience this?

Okay another question! So the pain hasn't changed much- still pretty excrutiating especially at night. But the crohns is a lot better- only going to the bathroom like three times a day and pretty formed. Here's the weird thing- throughout the day like every few hours the seton drains little...

theOcean thank you for your responses! Gives me encouragement! Now just to have the patience to wait for everything to heal :)

Okay a few more questions! 1. Is it normal to have a good amount of blood in the drainage? It's like a combo of brown/blood/yellow. 2. The drainage SMELLS. Does this get better? 3. I can still feel a little bump deep in my butt cheek where the abscess was. It's not nearly as big or tender...

Thanks for all your advice! It's good to hear that it gets better. Today was a better day! I had a lot of pain in the morning but it got better as the day went on and I was actually able to walk around a bit- hooray! I've got a baby so I'm very impatient to get back to being the Mama I need to...

Right now they are loose but not diarrhea if that makes sense. Even when I'm in remission i always go 2-3 times a day and now I'm going like 4 times. During the height of my flare I was going every two hours even in the night- so big improvement BUT the couple of times I do go are so painful...

Thanks for the info! Well the thing is, the prednisone seemed to have calmed down the actual crohns- so I don't really know if I would be considered in remission or not, given the seton. I guess that's what confuses me- if my crohns is under control but the seton is still draining (or not...

Ocean- thanks for the reply! How did your father heal his? And which biologic have you used? Have you ever come off of it? If so, did the fistula come back? I really would like to avoid being on a biologic for very long- my doctor is saying it's a longterm thing, which I understand because I...

Okay good! Makes me feel better.