Search results

I'm on Rifaximin for SIBO currently and I feel that it makes my Crohn's much worse. It has spread to the colon meanwhile and since starting Rifaximin I have increasing colon cramps, more frequent BM's and more mucus between the BM's. I'm taking a probiotic to decrease side effects and help with...

Hi, I'm wondering if anyone has experienced changed taste preferences. I don't have the slightest idea where it could come from, it developed within the last months: I don't have an appetite for sweets at all, was even hard to follow my meal plan that my nutritionist worked out for me, as I...

I tried acupuncture at a specialist centre for Chinese Medicine and it made my Crohn's worse (cramps and more tight feeling of the muscles around the intestines etc.) BUT it did help some for my arthritis pain, nothing for the degree of inflammation, but the pain decreased for a few days, so I...

I'm so sorry to hear that healthcare is so extremely expensive over in the U.S. Here in Europe it's way cheaper actually but the quality of health care or at least the waiting times for appointments and MRIs, CTs etc. also depend on insurance, otherwise it's the NHS everyone is left with. Have...

Thank you, Eridon!

No idea if these ideas are helpful but what about SIBO, lactose intolerance/fructose intolerance ect.? SIBO can make weird symptoms, I remember, was quite painful as well (after eating, so normally though out the whole day), but different from terminal ileum pain that I have now.

@Beach: I have tried so many different diets, including vegan, no grain, gluten free and many more (also SCD), then been on EEN on Dr. Hunter's protocol in the UK, followed by full elimination diet and relapsed again, and again, and again... They told me it's not a miracle cure and it's not...

Yes, that's an interesting thing: I have been vegan before and during diagnosis, stayed vegan for a while, lost more and more weight etc., cut out more or less everything (gluten free, grain free, SCD, raw vegan, low fat, low carb, high carb, went paleo in between as I thought it could be my...

Thank you Clash! I don't think that I have UC, I'm just curious. I've got a friend who has colitis but she does not have that burning pain in the colon. I just wanted to know whether there is someone with UC who has this burning as well or if that might be something that is more Crohn's...

I'm trying spelt currently and it does not seem to make things worse.

Have you considered seeing a dietician/nutritionist? I see a nutritionist regularly now, it's made a huge difference already, since eating dairy again (yoghurt, quark etc.). Basically it's about eating what you can tolerate (soft food, natural food, low in sugar etc.) and good combination...

I was on many different diets, vegan (before I was diagnosed), grain free, gluten free, paleo, raw vegan, low FODMAP (can recommend that one), lofflex, elemental028/modulen, vegetarian, low carb, high carb. Each of them for at least two months, only low FODMAP was effective, still eat low...

Haha, thank you, love that suggestion, David! I'll ask my insurance company about funding it, haha. Well, actually mine is grass fed and organic, it really tastes better, but I beliefe it's because it's full fat (3.5 %) and has acidophilus and also bifidus. And I'm a very bad eater at the moment...

I know you have Crohn's, ronrush, but there is a difference between Crohn's and ulcerative colitis, it's two different diseases. I'm asking for ulcerative colitis (even though I myself have Crohn's like you).

Well, to be honest, the choice also differs largely from country to country and from health insurance for sure, I believe. Unfortunately it's not just about treating patients when it comes to a decision what drug might be the right one.

Totally get you, same here. Hope it is effective for you, fingers crossed.

Thank you ronrush, I would be particularly interested in the "kind" of pain of those with ulcerative colitis, so please, feel free to share your "kind" of pain!

No, I would need to pay for it myself, it's so expensive.

Thank you so much Maya142!!! I really appreciate it! Your daughter hasn't re-tried Simponi, hasn't she?

It's a sign for active inflammatory disease in general unfortunately:(, also for arthritis.