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Sorry you are stuck in pain without relief. Just wanted to chip in on the fibroid front. There are different types; serosal, mucosal etc. It sounds like they are suggesting that the one in the endometrial cavity may also extend into the uterine wall. But what I was going to say was did they tell...

Tis crappy when your expectations are raised by the feeling you are finally getting somewhere only to find yourself stuck in a bit of a rut again. On the upside though the results do exist - albeit currently in a closed space - and they will reach you soon. Given your recent admission, you need...

Hi all, I was wondering what form do those of you still using the oral route usually take your medications in? Do you find liquid meds better? I keep meaning to ask my GI about this but keep on forgetting. I'm particularly interested in gastroparesis meds but also would like to know about meds...

Doh! That must be very frustrating indeed. I hope you are able to get through the weekend and get something down? Crossing my fingers it gets organised next week.

Hi rose*flo, sorry it sounds like you are in a difficult situation. Pain that is described as hot or burning and sharp is often indicative of nerve pain. So that's a possibility. Any pressure on the nerves is probably secondary to whatever is going on inside. Hope you get some relief whatever...

Mine started out variable, although that may have been because I was still eating a wide range of foods at the time and some probably caused more trouble than others. My intake is far more restricted now. Early saiety and nausea definately came first, then fullness. Nowadays I experience crazy...

Hey up Valleys...how are you doing now? I'm sorry you have been so unwell but you did well to get some decent hospital treatment...hopefully that'll be the silver lining to your cloud :thumleft:

Hi Keralin, sorry you had those hospitalisations. As Kimmidwife touched on there are nerve changes. These have been found in gastroP as well as crohns. Specifically there is a decrease in nerve cells containing tyrosine in gastroP and this is thought to play a central role in the delayed gastric...

I'm sorry to hear your daughter has another battle on her hands. The AGMD has a couple of leaflets about diet and gastroparesis http://www.agmd-gimotility.org/ed_library.htm although you've probably come across a lot of the advice already. Personally I have found changes to how I eat help as...

Hey and welcome. Sorry people are being crappy. Your disease isn't invisible here at least. I do feel for you. I have bowel disease and endometriosis (another much mythycized and generally poorly understood disease). Anyhow they are both 'invisible' and both have systemic effects in my body. I...

I know valleysangel92 has applied and deferred a place at uni in the UK. I'm sure she'd be happy to advise about the process. On a general note assistance offered by the specific university is usually for those with a wide range of difficulties extending well outside those who are registered...

Hi Jennifer, so sorry you are going through this. I'm inclined to second unxmas's suggestion...could you schedule a gynae consult? I really do not like the sound of your symptoms (in the nicest possible way!). Especially when you put together the whole package...bowel, gyn and uro problems. As...

Thanks for your kind thoughts. I'm sorry things feel so out of control at the moment. If you have reached your wits end then I guess you could have a conversation with your gynae about GNRH agonists. They are mainly used for endo and prostate cancer and most are monthly injections. They supress...

Hi Cloud, sorry you are going through this. Its crappy not feeling understood at any age but can be especially challenging when your of an age where statistically less people share first hand experience. Your in the right place here though. I just wanted to add on the menstrual exacerbation...

Yep the patches are absorbed directly into the bloodstream and bypass the liver. They are often tried when pills are causing problems. I know that they are used as alternative when people are having migraines or hypertension as people tend to do better with this route. I guess it depends on the...

On the thyroid side...Sorry I'm not sure from your post whether you have already been diagnosed as hyperthyroid? If so are you on antithyroid meds or beta blockers for it? If so what did your last bloods show? It shouldn't be left unchecked as can lead to thyroid storm (a medical emergency). If...

Yeah it is very early days for you. I have had many abdominal surgeries and pretty much without exception have still felt like a train wreck at day five. We all recover differently though so don't hesitate to raise it with your hospital if you're not sure. Feel better soon...

Sorry things are rough. I know how frustrating it can be when treatment hits a rut or an apparent option never truly gets off the starting blocks. Especially when large parts of your life are on hold because of it. I will cross my fingers for progress soon. :hug: Hope the dietetics appointment...

I've had a different part of my bowel removed but I have had this post op. I think it is just when the bowel is emptied it's an opportunity for everything in the rest of the GI tract to move which upsets things a little at the healing site. Five days is very early. Have you been prescribed...

How are you getting on now? Any decisions on the 6MP front? Yeah I think there is a fair bit of misunderstanding about mechanisms of pain too. You know your own body and can differentiate but it can be hard to get across the differences to people who are not familiar. I hope that you can find...