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Oh wow stellajess,:eek2: I have just read through your email from her!!! I am im a rush so cannot say much but if you are unhappy and have the option of finding a new GI then it might be worth considering. As a clincian myself I don't like her tone. Its is interesting that she refers to...

Yes, yes and yes again with bells on! :dusty: It is not so much her opinion, but that she is trying hard to force it on you. :ybatty: Fly free and see whats out there. And let us all know what YOU decide! :hug:

I agree its important to get as much clarity as you can. Just my personal opinion but the best specialists I have worked with have been those who view dealing with my ill health as a colloborative effort. Whether they were surgeons or medics. I am not in their shoes with their specialist skills...

I hope whoever you speak to, that you get good care from them and they help you figure this out!

I'm sorry you are suffering so much at the moment. My situation is different to yours but I agree with the others that where an element of choice is involved then quality of life is a key deciding factor. Also key for me is the risks of not having the op esp where my life could be threatened...

I can identify with not wanting to offend people who we depend on in a medical crisis. Though its absolutely fine to see your usual surgeon. Neither of them will bat an eyelid. I'm curious as to why you cannot contact them directly? If you don't have the contact details for the individual...

I have a situation where I cannot get much down and what I get down is of poor nutritional quality. I have turned to nutritional drinks. I have also been referred to a dietician/nutritionist so that I can get the best nutrition from my limited intake options, as well any more tests or...

Just a note on the pain. Given its severity, lack of improvement and that its exacerbated by movement, I would seriously consider going to hospital or at least contacting your GP again. Certainly if it should worsen you should seek help. As you don't yet have your dx confirmed, I would say this...

I'm sorry to hear that the surgery wasn't successful. I really do feel for you as a dear friend of mind has had several failed surgeries for a RV fistula. I'll cross my fingers for you that St Marks can help - I've heard only good things about them.

Another thing if she knows whereabouts in London she's headed is to work out which specialist she will see and ask her specialist at home to write directly to them. (Or if she doesn't know in advance to arrange this while she is there). It's not a guarentee but it can help if they feel they have...

There is a neat overview of the whole range of motility disorders (across the entire digestive tract) here if you're interested... http://www.agmd-gimotility.org/ed_library.htm Its the third factsheet down under the general information heading (sorry couldn't link it directly). Just gives an...

Hi Robin, Is it possible for you to make two plans? It'd be great for you if you can make it back and you have arrangements in place to help you do that. However, it's important not to put yourself under stress while recovering as it will use up vital energy. Could you maybe meet with your...

Aww I'm sorry you had to cancel your trip, but totally understandable in the circumstances. As you say you can have another trip when you are well enough to enjoy it - it's always nice to have something to look forward to. At least you caught it early. I always think the increased vigilance we...

So sorry that you are going through an admission especially this time of year. I hope they give you some answers and management quickly.

I have had to travel and access healthcare abroad. I think the most important thing for both healthcare and customs is carrying documentation with you. If she doesn't have one already, your daughter should ask her main doctor to write a brief (i.e. no more than a page) summary of her medical...

Lara I hope you are feeling better. Is it a gentle laxative you are using? Please take care as I was told they can make things worse if you are obstructed.

Thanks its good to have options...I was worried they'd just give me something that put me off completely. I need to up my calories but I also need to eat/drink something more nutritionally balanced. They discussed malabsorption with me but I don't know precisely what its messed up...

Hi Matthew, I'm sorry to hear of the awful year you have had. You say that the doctors have no answers in respect of your pain. I'm I right in understanding they are not thinking it's is down to the Crohns directly? I can only speak from the point of view of multiple surgeries (inc bowel...

Hi and Welcome. My two cents worth would be that you have / have had a lot going on. Ideally you need a whole picture approach as these things will all be influencing one another and that can make it very tricky to establish a new dx. I have hashimoto's and was severely hyperthyroid to begin...

:applause: I second that yay! I hope it helps settle the pains. Will cross my fingers that your white blood count stays up.