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Crohn's Disease Forum

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  1. J

    Confusing Fecal Calprotectin Results

    Glad she is doing better🤗🤗🤗💜
  2. J

    Remicade & cough

    My son is on remicade and developed a cough for a few months starting last spring. Doc was concerned about possible valley fever since we live close to the desert but it eventually went away on its own. If yours persists I would get checked by you primary MD.
  3. J

    New here, mom of VEO IBD

    Sending 🤗 hugs! Sorry you have to go down this winding road. You will find a lot of support and great information here. I would suggest to keep reading and researching everything you can but keep in mind it will be very overwhelming. My son was diagnosed 2 years ago with IBD and it still...
  4. J

    Ruptured appendix

    Just an update for my son... restarted remicade late October so he was off for 11 1/2 weeks. He had no GI symptoms but his arthritis symptoms returned with some minor ankle swelling and pain at about 9 week mark off the remicade. He had his usual GI appt last week. Also labs from October...
  5. J

    Remicade - lab test frequency? (adults)

    My son is 12. He gets remicade every 8 weeks and labs with every infusion...CBC, chemistry panel, sed rate, and Crp.
  6. J

    ‘Rush’ surgery and abx

    Great news! Glad he is feeling better!
  7. J

    Need to make Decision on Meds and Frightened

    Sending blessings and hugs🤗🤗🤗your way! My son also has crohns and spondyloarthritis. He is on methotrexate and remicade. I have no experience with any other biologic but just want you to know you have my support and I will pray for good health for you.
  8. J

    Ruptured appendix

    My son is doing very well. He has been a little emotional here and there since being home. (Came home Wednesday night). His worst fear was surgery and he is wondering why all this has happened to him. As far as the GI issues, nobody from their dept came to see him in hospital after the...
  9. J

    Ruptured appendix

    No they don’t think he is flaring. He had an mri abd and only the appendix looked inflammed. Infectious disease doc wants crp under 1.5 before discharge and less tenderness so we will see tomorrow.
  10. J

    Ruptured appendix

    Mlp... when the neck lymph nodes were removed did they find anything? My son has some Enlarged neck nodes too for over a month but could be from recent ear/sinus infection.
  11. J

    Ruptured appendix

    Thank you mlp, crohnsinct, and maya. Still here today in hospital. Abdomen is still too tender per surgeon for discharge. Crp was 5.0 on admit but now 3.2. CIC.. I’m in Cali too, what area are you in?
  12. J

    Ruptured appendix

    He is on iv antibiotics now and when discharged they said by mouth, not sure for how long. He is actually doing very well overall and has had no post op fevers. His crp pre op was 5.0. He will have crp tomorrow and based on that dr said possibly able to go home. As far as the questionable...
  13. J

    Ruptured appendix

    My son is in the hospital after having surgery Saturday for a ruptured appendix. He didn’t feel good Thursday after school had lower belly pain and fever . About 4 weeks prior to this had similar thing except had very bad headache, cough, congestion too. Pediatrician diagnosed him with sinus...
  14. J

    Remicade and surgery in my future/ Crohn's

    Hi and welcome to the forum! Sorry you aren’t feeling well and will be going through surgery. My son is 11 and was diagnosed 2 years ago. He is currently on remicade and methotrexate and is doing great. Hoping remicade will do the same for you. As for diet, when my son was flaring I kept...
  15. J

    Starting Remicade

    Great news that the remicade is working for you after one dose! My son is 11 and has been on remicade and methotrexate for 1 year this September. He responded very well right away too and has been symptom free as well. 💜💙. Initially he had infusions every 4 weeks but changed to every 8 weeks...
  16. J

    Elevated ALT

    Thank you for your replies. My son is a little overweight although he eats very healthy and no he is not diabetic. He is 119 pounds and 5 feet tall. He was never overweight in the past but after taking prednisone a couple years ago he gained 30 pounds in 1 month (went from 70 to 100 pounds)...
  17. J

    Elevated ALT

    My son is 11 years old and has been on remicade and oral methotrexate now for 1 year. He initially started on 6MP but changed meds due to diagnosis of JSpA. He's had fluctuations in his ALT since the start of 6MP, and continued even with the med change. Rheumatologist decreased the...
  18. J

    Mom w/4 yr. old w/ CD.

    Glad to hear your daughter is doing well and prayers for continued good health!💜💙❤️
  19. J

    ‘Rush’ surgery and abx

    What a terrible thing to happen to your son! Glad his surgery is over and he is back home with you. Sending hugs 🤗
  20. J

    Current Condition with Crohn's

    Hi Lynda Lynda, ensure does have a lot of sugar. Have you tried glucerna or boost glucose control?
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