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Hello Cat, I keep reading about Lily and she sure sounds like a lucky dog! I wish someone would pull me in a wagon sometimes;). I think you will know when it is "time," so keep spoiling your sweet girl. When I had Missy, she stopped eating and couldn't walk and then I knew it was her time...

Make sure you are on a low salt diet any time you take steroids . Hope you are feeling better soon Ron!

1leela, Your company must have an absent policy so I would obtain that so you are familiar with it regarding any punitive actions. Also if you don't have FMLA then I would obtain that as well. You can get an intermittent FMLA to take time off only as needed and then you would be protected. I...

He takes vit d 2000units daily, has about 3 dairy per day. Had level checked about 1 month ago and it was good . Also, looking back at his blood calcium levels, those are within normal range each time. Should I give him calcium supplement if blood levels have been normal for months? Thank...

Xmdmom, my son is 10 years old. He had the scan at Childrens Hospital.

I sent message to GI and rheumo. GI said continue vit D, no extra calcium needed. Rheumo said add calcium with vit d. 😂 Maya, I guess I don't really know if my son is in remission. He only had his initial scopes in 9/2016, MRE in 10/2016. I thought symptom free and normal fecal cal meant...

Thank you MLP. Would the calcium be hard to absorb if he has been symptom free since January ? Last fecal cal a few months ago was normal. ESR and CRP are still high but thinking from his arthritis as he is still having arthritis symptoms. Thank you💜

Hi Maya, no he has not been diagnosed with osteopenia or osteoporosis. We saw a dietician early in his crohns dx but not lately. I sent a message on Mychart to dr. So I am waiting to see what she says and if he should start calcium. I wish dr. Told me in November when he had the first scan...

After our last GI appt., Dr. said my son's bone mineral density from his dexascan in November was low so she wanted to repeat it. The Zscore at that time was -6.6. I just got results and his Zscore now is -2.6. I'm not sure how to interpret these results.

Thank you PDX!

Thank you MLP!

Thank you again Maya! Also do you know if oral vs. injectable methotrexate is better? Gastro wants injection but rheumo said pill.

My son was scheduled to have his first remicade infusion 9/22 but now it is postponed until he gets a hepatitis B booster. How long after the booster do you typically wait to start remicade?

Glad you are doing well! My 10 year old son will be starting remicade infusions on 9/22 so hoping he will not have any side effects either! Welcome, you will find a lot of support here.

He is doing pretty well. His right knee and foot mostly bother him but lately just with aches, not really needing tylenol or leg wraps. No GI symptoms since January. He still has this head tic 😟thing. He still gets tired out and needs to sit down a lot . We were just on vacation and did a...

Thank you for all the great suggestions. Again can't tell you how much I appreciate all you have helped us with this!

We saw the rheumatologist today and as expected my son will be starting remicade, just have to wait for the infusion center to call so we can schedule. I asked about the 6 mp and he said he will keep that for now with plans to stop it once the remicade is therapeutic. Also wants him to be on...

You should really be feeling better by now. Any way you can call your GP and be seen sooner? Seems like you need a cardiologist to order the appropriate tests to check for other heart problems. If your heart is "fluttering and pounding" you may be having intermittent arrhythmias. "Right...

Hi Farmwife, I started homeschooling last year for my son. He was very ill from July through December(diagnosed with Crohns Sept. 2016) and there was no way he could have gone to school everyday. He actually goes to school 2 days a week and I homeschool the other 3. He and I both love it and...

So it sounds like you never had a heart ultrasound? Can I ask what beta blocker you are on? Some people develop a pericardial effusion (fluid) which sometimes needs to be drained depending on your symptoms. Do you feel like you are feeling worse, better, or the same since starting the beta...