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Crohn's Disease Forum

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  1. J

    10y. old son newly diagnosed, sed rate high for months

    So HLA B27 and rheumatoid factor were both negative. Also latest sed rates 48 and CRP 1.50, fecal calprotectin 25. Had a rheumatology consult and he wants to wait and see what the MRI sacral shows which we finally got insurance approval for so I will call this week for that. Of course I...
  2. J

    10y. old son newly diagnosed, sed rate high for months

    We are still waiting to see the rheumatologist but my GI doc put in orders for MRI sacral, urinalysis, HLA-B27, rheumatoid factor (she contacted rheumo and this was their recommendation). I understand what the blood tests are looking for but why the urinalysis and MRI? His aches are always...
  3. J

    10y. old son newly diagnosed, sed rate high for months

    Just had labs again, CRP 1.10 and sed rate 66. I talked with my GI doc and she put in a referral for rheumatology so i will keep you posted. Thank you again for the advice.
  4. J

    10y. old son newly diagnosed, sed rate high for months

    Thank you MLP for replying. We go to Children's Hospital in San Diego and it does have an IBD center but maybe I will ask to see a rheumatologist. L has not been on EEN but he was drinking 3-4 boost a day when he was diagnosed. Our next appt is in June so I'll ask again about the sed rate...
  5. J

    10y. old son newly diagnosed, sed rate high for months

    . His Levels are almost therapeutic. We just had an increase in dose so I will see at the next lab draw.
  6. J

    10y. old son newly diagnosed, sed rate high for months

    Hello, my son L was diagnosed at age 9 in Sept. 2016 with Crohn's. He had no symptoms prior when he suddenly developed diarrhea and pretty bad foot pain. My initial visit to the doctor was actually for his foot. It hurt so bad he would cry at night, as well it was very swollen. His X-ray was...
  7. J

    Thank you

    I agree. My son is 10 (diagnosed sept 2016 at age 9). I feel very sad to know he will be dealing with a chronic illness for the rest of his life but I have found this forum to be such a wonderful resource and it has given at least some peace of mind . I as we'll have read a lot on the...
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