Search results

Hi C.J. I have experienced problems too with treatment, Pancreatitis etc. and in hospital with lung infection because of being on Remicade infusions. I was worried too about what next, but have been monitored frequently : Calprotectin tests and scans. It has settled enough for me to be on...

I hope all goes well for your test results. The Capsule endoscopy is straightforward and not stressful, so good luck.

Hi there, good luck with the Colonoscopy. Add a mixer, like Roses lime juice cordial to the Prep medicine you have to drink beforehand, at home to empty the bowel. This makes it more palatable. It could be IBS but wait and discuss this with your Doctor after results of Colonoscopy. Don't...

Hi Andrew, and welcome. So sorry you are feeling rough just now. There are no set symptoms for everyone with Crohn's , so it takes time to diagnose, often when symptoms become severe as yours has. I understand how hard it will be for you as I was misdiagnosed too. Keep seeing your Doctor...

Hi there, and welcome I hope you start to feel better soon. Crohn's is difficult to diagnose, no set symptoms for everyone! So try not to worry and hopefully you will get a diagnosis soon. I was treated for Diverticulitis for years until my symptoms became more intense and tests pointed to...

Hi everyone, I am pleased to tell you that the leg throbbing pain has gone, I am stronger and able to walk again. Back at my Tai Chi classes and also a college reunion, their Centenary year. So I have been doing a lot of celebrating recently! Of course, the Crohns hasn't gone but it is...

Hi there, it has taken 6 months but I am pleased to find my strength is returning. I can walk further and stay on my feet for longer. I still tire, not able to do Tai Chi yet, but am delighted to find some improvement. Coming off Steroids certainly caused me problems. I see my...

Hi Maya 234, I have had both. I spent the whole morning in a hospital ward as they took bloods every hour , after being injected with a drug, whose name I cannot remember. I await a letter from my Consultant, but it looks like he is waiting to speak to me in January. I know Cortisol levels...

Hi Maya 142, thank you for your lengthy and informed reply to my concerns. I have already had that special blood tests,, twice recently, confirming my Cortisol levels are back to normal, very good in fact. So, I will be seeing my Specialist into January and will have a lengthy conversation...

Hi Mountaineer 01, I was on that a few years ago, then switched to Remicade infusions. I ended up in hospital for three weeks as I became very ill with a lung infection. As I said, I unfortunately have a history of bad reactions to meds. I know Pentasa is mild meds, really for Collitis, but...

Hi there, thank you for your replies. Yes, my Crohns has worsened and I am on Pentasa just now. A new drug for infusion has been suggested but my Consultant is holding off just now, as I have a history of reacting badly to meds. I have had Pancreatitis , in hospital etc. I see my...

Hi there, any good advice for dealing with weakness, tiredness and pain after coming off Steroids. I having been on Prednisolone on and off for four years, first for Crohn's , then muscle weakness. I reacted badly to other meds and treatment for Crohn's. This year after tapering down, I had to...

Hi there, I do not know anything about that other drug for Arthritis, but I do know I am having problems having tapered off Prednisolone. I ended up having to go on Hydrocortisone for several months as my adrenal glands were not producing enough Cortisol. I am now borderline on the Cortisol...

Hi there, and welcome Yes. I am currently tapering down by half a tablet each month, smaller dozes than you. This is to prevent adverse side effects I had previously Viz dizziness and feeing faint. I wish you well , and hope all goes well for you tapering, :rosette1::goodluck:

Hi there, and welcome Yes , Crohns is a difficult illness which affects people in different ways. Not one treatment suits all! I wish you all the best for the future. :rosette1::welcome::rosette1:

Hi there, and welcome. Your Calprotectin test results are normal : 200. + for anyone with Crohns disease. Test resuts are only affected if antibiotics are taken with less than two week interval. I hope all goes well for you and you feel better soon. Do not worry. Speak to your Doctor about...

Hi Atlantic, sorry you are not so well now. I know you would rather not have any treatment but It cannot be left. I understand as I too have to consider injections or infusions in the future. It is very much an individual illness : what treatment suits one may not be effective for another. I...

Hi there, do not worry. It is a very easy test. You just swallow the pill, size of Pentasa, then wear a belt which records to a computer. You are given instructions as when to eat and drink. You are able to walk around wearing belt. Wishing your child well again soon...

Hi Ron, hope you get meds soon to relieve the symptoms , and help you feel a lot better. Wishing you well again soon. :getwell:

Hi Supernatural16, I hope you have a good day and feel better soon. Best wishes. Thinking of you.:bigwave: