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Hi Cmack, yes I have experienced that when Crohns is not even Bowel disease but a disease of the Immune System! That is why I give the advice of not informing everyone, It is personal . It is also a fickle, hard illness to live with as symptoms vary and treatment is not standard for...

Hi Supernatural 16, try to do your best and have a life. It is early days, so think about going on future school trips, and you may be well enough then to do so! As treatment kicks in, and if it is the one for you, then your symptoms become less frequent. I understand you do not want...

Hi there and welcome, I began with Steroids too. The amount given depends on severity of symptoms, and reaction. Many people on this forum talk about high levels, 20 to 30mg Steroids but when I was on a high doze, less than that ,I became very hyper!!! I was going up on ladders painting...

Hello and welcome, Supernatural 16 Sorry you had to cancel your trip but understandable until treatment relieves the symptoms. When the right treatment is found for you , then you will feel better and it will not affect your life so much. I hope you are feeling better today. Yes, Humira...

Hi Ron, I have reacted badly to meds and Remicade infusions, as you know, I ended up in Hospital for three weeks with a lung infection. Azathioprane caused me to have Pancreatitis after a short time on it. So I am now in a difficult situation. Best wishes to you , and hope you feel better...

Ron, I am now in the situation where my Consultant does not know what to do about me! I have agreed to Humira injections but they are holding off as I reacted. He says they have a problem with me, that is true, as I react to everything. I remain on Steroids for another problem. So I...

Hi Ron. Thinking of you and sending you my prayers and best wishes. I hope you feel better soon. You are so good at helping others on this forum. Yes, having Crohns is rubbish !!!!!!!!! :rosette1::panda-wave-t:

Hi Crystal clear, I am surprised you are tryng to ignore such pain ! I know from experience it is excrutiating and makes you feel sick. You cannot ignore it but please see you medic right away. I believe it is often left to pass through itself. I understand your fears though. You cannot...

Wishing you will again soon and your hubsand an improvement too.love and prayers to you both

Hi there, you will feel better once you have a diagnosis. Hopefully it turns out to be IBD or Diverticulitis, as these are easier to treat than Crohns. Crohns is very fickle, and there is no one treatment that suits everyone. getwell:

Hi Tots, so sorry you have a lot to deal with just now. It is not easy dealing with so much illness in the family. Crohns can be frustrating as symptoms vary so much and treatment is not easy either. Stick in there though, and don't let your health deteriate by missing meds and further...

Hi there and welcome, I hope all goes well for your colonoscopy and you get relief from pain soon. You got a quick diagnosis of Crohns. It was years before I was , just put down to Diverticulitis, until pain became severe. Further tests found inflammation associated with Crohns. Let me...

Hi Emily, yes I did have side effects to some treatment and had to come off. I eventually was on Remicade infusions for about 9 months but had to come off that too. I have been well, reasonably so, this last two years. I am on Steroids but may be going on Humira injections again in the...

Hi there, I am sorry to hear you are having a tough time. It does take time to get the right meds that help you. I was on several different meds, including the steroid you are on. Infusions too. It is a fickle illness , what suits one person may not necessarily help another. Ask your...

Hi Wilbur, They don't often do that test but it shows all. My Crohns was diagnosed with this test when previous Colonoscopies did not go far enough to do so. It is an easy test, just fasting from the day before . You will be given instructions re diet. Good luck, may all go well for you...

Hi Tony, hope you get home soon. Wishing you well and strong again soon.:getwell:

Hi Eleanor, sorry you had a set back with your surgery , but glad you are now on the mend. Get well soon. Let us know how you are doing. :rosette1::getwell::rosette1:

Hi Tony H, I hope you are doing well now and recovering from surgery. Wishing you well again soon. Best wishes .:rosette1::getwell::rosette1:

Hi Ary77, Hello and welcome to the forum. You will find this forum helpful for support and to express how you feel when the going gets tough. It is not an easy illness to live with. We are all individuals who respond in different ways to treatment. I hope you are well just now. Best wishes...

Hi there, sorry about the delay but as you say, an easier recovery period from keyhole surgery. I hope you have a comfortable weekend and all goes well for you. Best wishes. :rosette1::panda-wave-t::rosette1: