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Crohn's Disease Forum

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  1. CyCrohn'sGuy

    Any tips on surviving a sleepless weekend?

    Can you take a high protein, high energy drink with you to keep you ahead of things? Something like Forceval or Boost? You definitely should take an afternoon nap and as someone else pointed out, snack little and often and try and steer clear of the alcohol. I hope you enjoy the weekend...
  2. CyCrohn'sGuy

    What are you eating right now?

    Cup of tea and 4 morning coffee biscuits !!!! Tonight's dinner, jacket potato with low fat cheese.
  3. CyCrohn'sGuy

    What are you eating right now?

    I like your way of thinking!!! Costas
  4. CyCrohn'sGuy

    Humira

    I had the loading doses of Humira one week prior to emergency surgery due to a perforated terminal ilieum. I had 80 cms of intestine removed. I am still recovering from the op and trying to gain back some strength and weight which I am finding almost impossible. My GI has recommended that I...
  5. CyCrohn'sGuy

    Humira Club Support Group

    Nicole, it is imperative that you have a TB test done before you start using Humira or any other TNF drug. I'm amazed at the casualness of your doc. Costas
  6. CyCrohn'sGuy

    Humira Club Support Group

    Best of luck with the Humira. Please let us know how you get on.
  7. CyCrohn'sGuy

    Hey guys :)

    I had emergency surgery last month and had 80 cms removed including the terminal ilieum and while I am still in recovery (which may take several months) I cannot tell you how it feels to be pain free for the first time in so many years. Best of luck on Monday. Sending you positive vibes for a...
  8. CyCrohn'sGuy

    What are you eating right now?

    Pre-surgery: Air, next to nothing Post surgery: Boiled chicken, boiled potatoes, baked potatoes, pasta, courgettes, yoghurt, custard, plain biscuits, eggs, toast, various cheeses, cold meats, tea with a little milk, bread rolls. I know it's not very exciting but compared to what I was eating...
  9. CyCrohn'sGuy

    11-19 Year Club

    Diagnosed 1998 - 12 years ago. Time flies when your not having fun!!!!
  10. CyCrohn'sGuy

    Please complete my survey

    Done!!! Costas
  11. CyCrohn'sGuy

    Split Buttcrack?

    Just got out of hospital yesterday after surgery and lying down for 15 days in practically the same position did no favours to my butt crack crack. It's also very dry and sore so I used some johnsons moisturizer to soften it which seems to help a little. Costas
  12. CyCrohn'sGuy

    Is it ok to self-diagnose?

    Pen you were right!!!!! My intestines did indeed burst on 23rd August while I was at work. That same sharp intense pain in the ilieum and I dropped like dead weight to the floor with a perforated intestine. My boss, who is also my best friend, rushed me to my GI and after an X Ray, an...
  13. CyCrohn'sGuy

    Humira Syringe

    Hi Vintage Ann, how are you feeling now after almost a week on Humira?
  14. CyCrohn'sGuy

    Surgery tomorrow!!!!

    Speedy recovery Bev!!!! Costas xxx
  15. CyCrohn'sGuy

    Humira Club Support Group

    5 days in and to be honest I don't feel any better. In fact, since the loading dose I have developed a razor blade swallowing sore throat and I still have pain in the area of the Ilieum. I have lost more weight also. I mentioned this to my GI who told me I need to wait a while to feel the...
  16. CyCrohn'sGuy

    Humira Syringe

    Thanks Joan. Just got back. The GI did the first 2 injections which stung awfully and I did the next 2 but didn't feel a thing. He said I did them fine. I felt a little dizzy afterwards so the nurse made me a cup of tea and we chatted a while until I was ok to leave. Not sure what I...
  17. CyCrohn'sGuy

    Humira Syringe

    I'm going in for my first 4 shots today. A full attack of 160 mg of Humira. My GI will be doing the first 2 and then I will do the next 2. I've been up since 5 am as I didn't sleep too well. Probably nerves. My appointment is at 11.00 am. And it's going to hit 41 degrees celsius today...
  18. CyCrohn'sGuy

    GI said Remicade would be a life-time thing for me....?

    Ethan, my GI said the same thing to me. I was on Remicade for just over a year and felt great for 8 months. I started on 8 weekly infusions and after a hiccup in the middle somewhere went onto monthly infusions. After that the positive effects started wearing off. I hope things stay great...
  19. CyCrohn'sGuy

    Is it ok to self-diagnose?

    I guess I knew the answer even before I asked the question. I spoke to my GI who did in fact slap my wrist for not telling him prior to upping my steroid dose. It didn't help anyway. I've been miserable for days, have absolutely no appetite and am in pain. My GI did not seem all that...
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