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How did the follow up go? Your sphincterotomy was recent,it will be painful for awhile. Those muscles need time to heal. We're you given something for pain? I hope your surgeon answered all your questions at the follow up.

You are welcome Madeleine. I do hope you check the support group out. Your experiences will add to the group. Saying it is an adjustment is an understatement. Surgery is a big thing. Keep your surgeon in the loop of how you are doing. Pain is to be expected to a certain extent at the...

http://www.crohnsforum.com/showthread.php?t=47942 This should be a link to the fistulas support group. Perhaps you already visited it. I would let your colorectal doctor know of the discharge. There will be be pain/discomfort after a seton placement. I have five fistula with three that had...

Here is a link http://www.crohnsforum.com/showthread.php?t=63899

A diagnosis does help with a a plan. Know what you have to fight,right?

I have been told by specialists that diet does not matter too. I find that statement incredulous to be made by a medical professional. We are all different,what works for someone may not work for another,to say diet has no influence on IBD is outrageous to me. I follow the SCD and am fortunate...

I started Remicade at age 50. I just turned 53 and so far so good. You are not alone with your worries about biologics.

You should get results in 4 weeks or so...possibly.

Prometheus is in California. I know because I get bills from them. I think you will get results from Prometheus Labs in the mail regarding your test.

I had a combination laparoscopic/open surgery for my resection. I hope it goes well for you.

I can relate my experience of a small bowel follow through. You start by drinking a contrast. What they are doing is taking x-rays as the contrast moves through your GI tract. They take an x-Ray,have you walk around a bit,take another in 20-30 minutes or so. It does take several hours or more,a...

Well,I decided not to have infusions at home. Perhaps I may change my mind later on. My GI felt a hospital setting was the best and I went with his recommendation. A safer environment.

http://www.crohnsforum.com/wiki/Fecal-Calprotectin

Perhaps I'm not getting it all. A Prometheus test detects the amount of Remicade once a person has started infusions. Antibodies are tested for too,very important.

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wholesomejoe,you need to see a colorectal specialist. Abscesses can form into fistulas. You need to deal with things before they get worse,in my opinion. I can relate to the $$ problem,like so many of us can. The danger is the damage being done to your body. I have five fistula that went...

Welcome Melanie. Wow,you have a lot to offer the Forum. I'm glad your willing to chat and share your experiences/knowledge. I feel the Forum is a great resource for finding information and sharing too.

I think a lot of us lurk in the weeds for a bit before joining. It helps to see what the Forum is like. I did the same thing. Good luck with the upcoming scopes and let us know how it goes.

I recall taking canasa,suppository,for proctitis.

The fear of not being able to retire is shared by too many with IBD. My bigger fear is not being able to retire[I]and[I]not being able to continue to work even though I must.