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I'm wishing your husband the best as well.The fistulas,fissures and abscesses support group may be interesting to you http://www.crohnsforum.com/showthread.php?t=47942.A place to check out for specific questions about setons,fistulas,etc..A good place for support as well as information. Has...

Welcome! I think many of us hid in the weeds before actually joining the forum,gotta check things out,right? Thanks for introducing yourself,we all have a story and you never know who might benefit from hearing it.Let us know how tuesday goes.

I hope your son benefits from the infusions.It is a tough choice to commit to remicade.Yeah,once I'm hooked up I read.Others watch video/tv or sleep.I have been known to nap a bit as well.We do take one day at a time,enjoy what we can and worry when we have to.Thanks to you for supporting the...

astarks-I can relate to people not being able to stand us getting hooked up for an infusion.My wife won't come with me.She recently told me when I was in the hospital for my resection(1.5 years ago)it was hard for her to even come to the hospital to see me.She came every day though,for a week.I...

aarthi- Welcome to the forum! Having a GI you trust is great,take advantage of the resource.I have five fistula and three draining setons.My first infusion was a year ago the end of this month.You can read back through my recent posts,but I feel remicade has helped me.We are all different and...

Hi palapu Here is a link to the infliximab/remicade support group. http://www.crohnsforum.com/showthread.php?t=4544. A good thread to read through and ask questions. I have fistula and setons...hmmm...http://www.crohnsforum.com/showthread.php?t=47942. This is a link to the fistulas,fissures...

Hi BigBoss Feel free to vent,we need to let it out.Stress is a big factor when dealing with IBD.You have been through a lot.I'm glad you recognize the positives in your life as well as your challenges.It sounds like you have a lot to be proud of.It is true there are those worse off than...

Have you checked out 'Diets,fitness and supplements'? If you haven't,it may have some information you find helpful. Everything dealing with fitness, food, supplements and diets can be found here. Sub-Forums: Juicing, SCD and Paleo Diets, Cooking With Crohn's, Fitness and Exercise

Welcome to the forum Lenah. Happy to hear your working with your GI to navigate your journey with UC. Being in denial is understandable,IBD is a tough diagnosis to take.I'm glad your GI talked about it with you. I've always liked the term 'new normal' that,to me,describes our day to day dealing...

Glad you have someone to keep you company from time to time. Yeah,my first few infusions the nurses stressed I could hang out and rest if needed.How do your friends react?Do they stay for the whole time?My wife can't stand seeing me hooked up,gives her the creeps,she says.So much for in sickness...

Sorry about the diagnosis but glad you are seeking information.We all need to vent and this is a good place to do it. I understand your apprehension about Remicade.I don't see any reason you couldn't continue skiing,it shouldn't have any affect in that regards. I started infusions one year ago...

Yeah,those who don't know what it is like can get impatient and judgmental. I do well after my infusion but I do hit a wall in the early evening the day of.My wife has been less than supportive a few times. I just deal with it and feel a bit sad.

You have been diagnosed? I am a big supporter of writing down questions/concerns in between doctor visits,as Lady Organic suggested.It helps make appointments more productive.We can be flustered or feel rushed and get home and realize the questions you had went unasked. Voice your concerns when...

Glad to hear Remicade has been a miracle drug for you. It has really helped me as well. I am begrudgingly thankful. Do you all go to infusions by yourself? With someone? Just curious,perhaps it could be a poll question.I go by myself,by the way.I admit I wouldn't mind company from time to time.

Welcome to the forum Colby! Thanks for sharing your story. If you haven't yet,I hope you check out what the forum has to offer. Here is a link to the Humira support group. http://www.crohnsforum.com/showthread.php?t=6500,you might find it interesting and helpful. We are a diverse group,for...

I thought it was common to call your weight in ahead of time.I feel fortunate my hospital does it,it saves about 30 minutes at least. I have a BP cuff on during infusions and it takes a reading every 15 minutes.Last infusion the BP monitor they used worked without having to wear the O2...

Glad it went well aideen33. The nurses want to be sure you don't have any reactions when you start infusions. Once they get to know you and how you do during infusions they won't hover around so much. Are you able to call your weight in advance? That saves some time. I call an hour before and...

I recall going for infusions this past winter. I'd recline in the chair with a pillow to prop my head, book at the ready. The nurse would put a warmed blanket on me and zzzz...nap time.

Good luck! The loading doses are the hardest,they are so frequent. Being properly hydrated is always a good thing. Like I said a couple of posts ago,I seem to do fine after infusions now.Give in to the urge to nap during infusions,ask for another pillow.:thumright:

I took the pic for my avitar one year ago today before a fistulotomy and seton placement. How time flies when your having fun!