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Crohn's Disease Forum

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  1. J

    Recently Diagnosed Support Group

    I'd love to know that from people in here in general... what was your longest time in remission and what drugs were you on then? Just to give us newly diagnosed a little bit of hope that a long remission period is possible...
  2. J

    Recently Diagnosed Support Group

    What was your longest period in remission? Were you in remission before the biologics?
  3. J

    Nasal congestion and pain???

    When my allergies act up and I use the nasal spray I use 2 sprays in each nostril twice a day. Maybe upping your dose a tad will do the trick? Also make sure you´re not "snorting" in the spray. Its temping to use the spray and then snort it in rather than let it stay in your nose and do its...
  4. J

    Nasal congestion and pain???

    It sounds like chronic sinusitis/allergies to me... I have that too, by the way and I never sneeze but my nasal passages are chronically irritated. What helps? 3 things: 1: "washing" your nasal passage with saline. You should do that at least 3 times a day to really feel a difference. 2: Use the...
  5. J

    Recently Diagnosed Support Group

    Have they ruled out a blood clot? How long have you been on Humira? And how long with Crohns, if I may ask? As a newly diagnosed person, I wonder what the prognosis is like for most people. Did your disease start off as mild and then progress? Have you tried other anti-TNFs and...
  6. J

    Which tests should still be considered - for Crohns dx

    Hi there! Recently diagnosed myself and I agree with everything said above. I would only add one thing: the test that finally gave me my diagnosis was a capsule endoscopy. The procedure is very simple: you swallow a vitamin pill sized camera that takes around 2-5 pictures per second of your GI...
  7. J

    Recently Diagnosed Support Group

    Hi Ron! Hope you are doing well!
  8. J

    Recently Diagnosed Support Group

    As someone recently diagnosed, I think it would be useful to have a place to discuss first treatment options (eg: step up vs step down), anxieties, tips and recommendations as to how to live with IBD and to receive some positive encouragement from those who have been struggling with this...
  9. J

    Fear of skin cancer on aza/imuran

    Hi, Thommo. Can you (whilst wearing sunscreen) stay out under the sun without problems? Eg: spend a day at the beach in normal swimwear?
  10. J

    MAP Vaccine Ready for Human Trials - Could be Used for Crohn's

    Hi everyone! I'm new to the forum (and newly diagnosed) and trying to get my head around all the currently available and future treatment options for Crohn´s. As I read about meds in Phase II/III, I couldn´t help but notice that more often than not promising drugs are bought by bigger...
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