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Crohn's Disease Forum

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  1. trebor-HI

    Cost of Stelara

    My Stelara treatment consists of a 390 mg loading dose administered by infusion. After that, I receive a 90 mg maintenance dose every 8 weeks administered by self injection. I had the infusion several weeks ago and will have my first maintenance dose in about two weeks. I'm with Blue Cross...
  2. trebor-HI

    Switching from Entocort to prednisone

    Interesting that your Doctor is putting you on Prednisone. Have they tried any of the immunomodulators or biologics? I was only on Prednisone once, during a hospital stay for a small bowel obstruction. The Doctors wanted me to taper off pretty soon afterwards and start Humira. As it turned...
  3. trebor-HI

    Iron Infusions/Anemia

    I can see this is an old thread but wanted to chime in. I'm 61 years old and a lifelong runner. My running pace improved dramatically after an iron infusion. I've had two sets of iron infusions. One set in 2015 another set in 2017. The 2015 set consisted of three infusions of Venofer. The...
  4. trebor-HI

    Humira and peripheral neuropathy

    Reviewing my old posts and came across this. I did have brain and spine MRI's back in 2014. A demyelinating lesion was found on my thoracic spine. I was instructed never to take Humira or any other biologic again.
  5. trebor-HI

    Normal Small Bowel Follow Through???

    Not sure about this: I think a SBFT can identify severe narrowing of the small bowel due to strictures. I don't think it can identify inflammation and ulceration. It would be interesting to learn the doctor's comments on this...
  6. trebor-HI

    Patency Pill and Pill Camera

    Just to follow up...I took the patency pill and 28 hours later I was x-rayed. The pill was still in my terminal ileum. I was x-rayed again 76 hours after I had taken the patency pill and the pill was not evident in my GI tract. So, don't know if the pill passed intact or if it dissolved. I'm...
  7. trebor-HI

    Patency Pill and Pill Camera

    I swallowed the patency pill yesterday. 24 hours later I passed my bowels and hoped to see the pill. This is gross but I collected the stool and mashed through it. Not sure but I think I found bits and pieces of it. They're going to do an x-ray later today to see if patency pill is still in...
  8. trebor-HI

    Normal Small Bowel Follow Through???

    My understanding is that the SBFT's are not very exact or conclusive. It seems to me that all these tests: CT's and SBFT are difficult to interpret. Makes a Crohn's diagnosis of the small bowel difficult and uncertain. When they did the colonoscopy were they able to pass through the...
  9. trebor-HI

    Humira and peripheral neuropathy

    Thanks Kotite4ever and nogutsnoglory for getting back... In my case, I developed a numb sensation at the front of my calf and the top of my foot the day after my first dose of Humira. Actually developed a mild "foot drop" condition. It has yet to subside even though its been four weeks since...
  10. trebor-HI

    Humira and peripheral neuropathy

    if OP is still tuned in...was wondering if your peripheral neurological issues ever subsided after ceasing humira.
  11. trebor-HI

    Humira and Multiple Sclerosis

    I noticed a zone of numbness around my shin and top of foot the day after my first Humira treatment (four 40 mg pens administered subcutaneously). When I reported this to the GI doctor he said that there is a concern that Humira can "unmask" undiagnosed multiple sclerosis (MS). He advised that...
  12. trebor-HI

    Intestinal Blockage / Obstruction Support Group

    Went 11 days with absolutely nothing...then, after I wrote my first note this morning, I finally produced a moderate amount. So, maybe the crisis is coming to a close.
  13. trebor-HI

    Intestinal Blockage / Obstruction Support Group

    I was in the hospital four days total, Wednesday morning too Saturday evening. So, as of this writing, I've been out of the hospital seven days but normal bowel movement has not yet returned. Actually, just did an enema that produced first/moderate results. Encouraging, maybe it takes time...
  14. trebor-HI

    Intestinal Blockage / Obstruction Support Group

    Went to hospital with SBO just last week. It was due to Crohn's and was located in the ileum. The nausea and vomiting resolved but I still haven't moved my bowels. Been 11 days already! Anybody ever experience this?
  15. trebor-HI

    Diagnosed with Crohn's

    I was hospitalized for four days with a small bowel obstruction. Got sick Tuesday night, was sick and in the hospital Wed & Thu, still in the hospital fri & sat but feeling much better. I was released from the hospital Sat night after holding down a solid/bland meal. Thing is, I haven't moved...
  16. trebor-HI

    Starting with a biologic?

    Of interest, I mentioned to my dermatologist that my GI doc had me on Imuran and wanted me to go on humira. The dermatologist said he frequently prescribes Humira for psoriasis, an inflammatory skin disease. Said it was a very safe drug. On the other hand those little Imuran tablets are very...
  17. trebor-HI

    Should I take Humira?

    Thanks Mike-in-Bklyn that is encouraging. After 3-1/2 years on Humira, what is your current dosage and how often do you take? Have you reduced the amount you have had to take over the years?
  18. trebor-HI

    Should I take Humira?

    Thanks for the replies. I appreciate the feedback and am happy to hear that your experience with Humira has been positive. I haven't started yet. Still struggling with the decision. I did Imuran but after two weeks I had fevers, night sweats, lumps and a rash! Hope humira goes better.
  19. trebor-HI

    Should I take Humira?

    I'm a 57 year old male diagnosed with Crohn's March 2012. My only symptom is that I have about 3 episodes a year during which I experience nausea and vomitting. The episodes usually last about 12 hours, I eventually fall asleep and awake feeling fine. I have no other symptoms! The Crohn's...
  20. trebor-HI

    Intestinal Blockage / Obstruction Support Group

    I'm a 57 year old guy. I experience 3-4 episodes a year of vomiting. This has been going on for about 10 years. I finally went to a GI and had a colonoscopy that revealed crohn's at the ileocecal valve. Never had problems with diarrhea, just the vomiting. My last episode, about two months...
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