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Haven't tried a second opinion yet, but need to. Our dr. is taking too long and waits until things are so bad that my son needs surgery. I'm totally clueless when it comes to going out to other doctors. My insurance plan only allows me to see one dr. in las vegas (and vegas is not the best...

Any parent out there have a very young child on Methotrexate? My son is 5. All treatments have failed. He has a J-pouch (and it is a nightmare). Now they want to try Methotrexate. This is a last resort for him and there are no other options at this point. I'm freaking out because his...

Thanks. I didnt think it was true, but had to check anyway. Flying scares me and I would freak if I had to deal with his bag messing up too :-)

traveling question I have a silly question that I have searched all over the internet and have seen mixed answers. My 4 year old had a colostomy. He wears the bag and we are planning to travel next month. I have heard from some that the bag can burst on a plane. Is this true? I have read...

Things have been getting a little better. We are getting his bag to stay on for 2-3 days at a time with the use of tape to hold it in place. Every couple weeks we have a bad day where we have to change the bag 3-4 times a day. But, definately an improvement over the past few weeks.

Thank You everyone for the suggestions. I am going to start to try some and see what will work best for him. I actually got one bag to stay on for 2 and 1/2 days!! That's my record so far :)

ileostomy bag not sticking My 4 year old had his colon removed about a month ago and now has an ileostomy. We use the convatec one piece drainable pouches with the stomahesive paste, but can not get them to stick any longer than a day. Sometimes we have to change it several times a day and...

You're definately not the worst mom ever!! I have felt this way several times. Zachary had the tube for a while and got used to it. He is so spoiled rotten because of my guilt over him being so sick all the time. It will get better :)

It sounds like we are in similar situations. Our doctors told us the same thing about the meds. Zachary had all of the same symptoms. He was constantly tired, always in the bathroom (even throughout the night), weight loss, constant fevers, rashes, sores... Zachary is adjusting well to...

medication question Not new here, just havent posted in a while. I'm just wondering if there are any of you parents out there who have children who did not responded to any medications? My 4 year old has been on several different treatments and none have worked. In fact, some made his...

Thanks Troy, My son is going to be 4 in July. We still have not gotten medications and things under control yet. He has never had a solid poop in his life. We found out in December that he has crohn's. What type of diet is your son on? I want to try to make some changes in my son's diet but...

Thank You! Thank you everyone for you suggestions. I am going to lay off for a while until he is doing better. He is supposed to be starting Remicade or Humira pretty soon..just waiting for my insurance to approve one of them.

Thanks Rebecca, He actually has a few messy BM's at night and during nap so I think that maybe he cant control it. He goes to the bathroom at random times throughout the day. I can't seem to figure out his schedule. I may try not push so hard and maybe when his meds get straightened out he...

Does anyone in here have a child with Crohn's who is trying to toilet train? Or has anyone had experience with this. I am having a rough time with my 3 and 1/2 year old. I'm not sure if he can even control it, but he has several accidents a day and he is frustrated and cries when I have him...

Hello everyone, My name is Heather and I am joining this forum because my 3 and 1/2 year old son has been diagnosed with crohns (he also has high functioning autism). I always knew something wasn't right. He barely eats and has never in 3 and 1/2 years had a solid BM. Right now we are in the...