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Hello all, I know this part of the forum is quiet but wondering if anyone has any experience of coming of methotrexate and really struggling? I am trying to come off methotrexate at the moment and I am having a tough time as I am already having symptoms after coming down from 25mg to 17.5mg. I...

It's quiet over in TTC but I will start a thread to see if I get any replies. Unfortunatley I have tried both imuran/aza and 6mp and ended up in hospital with pancreatitis both times. I have exhausted all other medications even cimzia had to be prescribed by my rheumatologist as its not licensed...

Just felt I had to write this out as I can't stop going over and over in my head. I am feeling really frustrated I am trying to reduce my methotrexate dose, after speaking to my rheumatologist and getting the ok, it's just not going well at all. I have gone from 25mg to 17.5mg and I am in a lot...

I have bad reactions to lots of medications too. I had severe reaction to aza and 6mp but two years ago tried methotrexate and had no side effects, it did however start to not work as well and I am now on cimzia as well. Methotrexate made me feel sick at first but I got used to it I take...

I think death/illness in the family has had a massive impact on my health. After my dad passed away I became very ill and it took a long time for me to get better physically from flaring and emotionally. I am now a lot better but still have problems with my health. I found working long...

Sorry you are having problem with joint pain it really can be awful. Have you been to see your GP? They might be more open to prescribing you something for pain that's who prescribed tramadol for me when my joints were bad but I don't like taking it as it really messes with my head. Have you...

I am on cimzia after failing both humira and remicade, so far it is working well. It did take all the loading doses for it to start making a difference but for me it was worth sticking with as now I am able to have a more normal life. I still have some problems but I can deal with them as I am...

I was told by my rheumatologist to wait 3 months after my last dose of methotrexate before we can start. Im sure your dr will be able to put your mind at ease.

Yes I definatley have had upper abdo pain before and indigestion I have found certain foods make it worse, mainly rich foods especially chocolate for a long time I wasn't able to eat it at all. I am now able to eat it every now and again without any issue. Treatment with different medication has...

Hello and welcome to the forum but sorry to hear you are suffering so badly. I suffer badly from joint pain and swelling whilst flaring and I have been diagnosed with enteropathic arthritis and is a quite common extra intestinal manifestation. I would see if you can get refered to a...

There are definatley times when I get fed up with all the medication changes but I try to stay positive and think that it will make things better in the end. Pred is horrible but has helped me on many occasions whilst bridging the gap when things aren't going so well. I really hope they can get...

I have tried humira and was on it for around a year before I started having alergic reactions to the injections it worked well up until that point. I have recently started cimzia and have probably been on it for 2 months now and I am doing well it has improved things a lot. I am still not...

It is hard to be patient especially when you are in pain and have been for some time. I was really worried too after having it seem to work so well then nothing but it seems to be worth sticking with now :)

Not about flu jab but to add to what Cat said about hand sanitizer it also doesn't kill c dif so its better to wash your hands.

Hello Isabelle I had exactly that happen to me after 9 days I started to feel amazing then after the next lot of loading doses I felt awful and was in a lot of pain. But now I am feeling really good again and I'm still improving I have finished my loading doses now and have done my first single...

I had my braces about two years after my crohns diagnosis and I had them removed a couple of months ago after having them on for over 2 years and it has made zero difference to my crohn's. I now have a retainer and still haven't noticed that it has had any affect on my disease. I have had flares...

You can get pre-filled syringes this is what I have at the moment so its just as quick as getting the pen out of the fridge. I can understand if you can't get hole of those though and having to faff around with filling them

I did the humira pen and was fine with it at the time although it does sting because of the speed the medication is going in but now I am on cimzia and using syringes I find it a lot easier. I thought I wouldn't be able to do it because I could see the needle but once I realised the needle isn't...

Yeah and I deffinatley needed it today struggle all the way but now home resting :) I couldn't give up my morning tea no way I need it to get out of bed in the morning

I've not heard that about caffeine and methotrexate and I haven't noticed it makes side effects any worse. In fact I am using caffeine today to get over my methotrexate yesterday otherwise I would be slumped in a corner somewhere lol