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Thanks everyone I won't over do it with the fluids just have a little more to see if it makes a difference. It's something I will keep an eye on for the next few days and see if this makes it any better.

DJW I am tired but put it down to the anaemia and I'm not peeing anymore than usual and it looks a healthy colour. Thanks for replying too, I am increasing my fluids to see if it makes a difference and until I can go to the shop tomorrow to get some electrolyte drinks.

I had a blood test on Thursday and my potassium was ok. I am anaemic and my wbc and platelettes are still high but I'm still tapering off steroids so thought that could be why they are high. I have a blood test form for vitamin b12, folate and ferritin to check if that is what is causing the...

Hello all Firstly I'm sorry for posting another question it's all I seem to do lol. I am having really bad muscle cramps and wondering if anyone else has experianced anything like this? I have searched and found info about muscle pain but not the cramps. The cramp I am getting is like nothing...

The appointment went fine but being refered to the dermatologist to get the rash looked at to see if it is caused by the cimzia hopefully its not.

I will mention everything to my GI as it turns out I have an appointment tomorrow so its good timing, I didn't even realise I had an appointment but got a txt yesterday. So I am all prepared had my blood test today in preparation for the appointment and just thinking of everything that has...

Welcome back Ian! I remember some of your posts from a couple of years back when you were struggling, it sound like you are coping with everything better now. I think a lot of us have moments with how we look as the medicines and the disease itself can change our appearance so much. I am current...

The other symptoms I have are D, weight loss, passing blood, joint pain and swelling, skin tags, vomiting and loss of appetite. The blood tests the rheumatologist sent me for I think where rheumatoid screen, hlab27 and ANA screen but I was almost 4 years ago now so I there might have been more...

Thank you for replying I really appreciate it. This is what I am a bit worried about I really don't want it to be a reaction from cimzia. I am waiting to hear back from my GI but it has been over a week now since I called them so I am going to phone them again and I might make a GP appointment...

I have had joint pain for a long time now but the latest flare up has been the worst. Mine usually comes along with other crohns symptoms but this time they haven't been as bad just awful joint pain. I went to a rheumatologist who diagnosed me with enteropathic artritis after x rays and blood...

Sorry you are feeling so bad currie sending you hugs. I am at the same point as you been on cimzia for 6 weeks now for the first couple of weeks I felt amazing and was running around like nothing had ever happened but it has all changed. I am still holding out hope as the review date is 12 weeks...

Just to add still having joint pain that causes pain when walking... Well even when sitting or laying down but not as bad as it was lol. Have finished all my loading doses now so still another 6 weeks to see if this works but the first six have gone so quickly that I am starting to worry. I was...

Sorry you have had so many bad experiences with crohns and the treatments you have tried. I have tried humira and remicade and had reactions to both and I have now started cimzia I have just finished my loading doses, so far everything seems to be ok. With these drugs they all belong to the same...

Just thought I would ask to see if anyone has experienced anything like this as I don't know if its cimzia or something else. I have a weird, red and slightly raised rash on my face but just on one cheek and Its been there for a couple of weeks now. I haven't changed any of my skin care routine...

I'm sorry you are still suffering but its good the your dr isn't giving up hopefully they can get answers for you soon and get you feeling better. Sorry I don't know about the MRI bit but just wanted to send you my best x

What I find very frustrating is that hospital cafeteria food for staff/visitors is usually a lot better quality than what goes around to the wards. I think it should all be the same and not down to food that is paid for and food that you have when you have to stay in the hospital. When I was...

It is different for everyone some people can go back to eating whatever they want and others still have some problems with certain foods. It can be tempting to rush in and try eating everything but try and take it slow and have a small amount and see what happens. I hope the humira works for you...

Sorry you are having a horrible time and hopefully they can get the appointment moved up for you soon. As others have said if your symptoms do continue to get worse got the a&e and get seen its not worth suffering through it. I have enteropathic arthritis which goes along with Crohn's disease...

Hello and welcome to the forum. I get bad hip,knee and ankle pain and it is and extra intestinal manifeststion of Crohn's disease called enteropathic arthritis. Usually it will flare up with other stomach symptoms but recently I have had it just on its own but its still the same cause. Have you...

Didn't realise its prescription in US. I found even though its an NSAID it didn't affect my crohns but it may not be the case for everyone as you said. I didn't know if it would be the same if its applied to the skin instead of tablets but its hard to find anything about it. I got to the point...