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Crohn's Disease Forum

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  1. M

    Any experience with Rinvoq

    I have been having Crohn’s for 16 years now. The first 9 years, my disease on colonoscopy and pathology was very mild, though the pain was very unbearable for me, so I was not eligible for biologics. In 2016, I developed my first perianal fistula and was put on Remicade every 4 weeks. It turned...
  2. M

    Tapering pred

    Thank you very much Astra, I saw another doc and he upped the dose to 7.5 mg for a month until i see him again. Take care!
  3. M

    D and constipation

    Hi matty, I think I do have the same as you. Correct me if mistaken. You mean, for example, you have diarrhea in the morning, you have 5 bowel movements and then in the evening, you need to have a bowel movement but you don't pass anything? I think the cause of my problem is that I'm having an...
  4. M

    Acid Reflux

    I have had GERD for 13 years now and have also gastritis and duodenitis (inflammation of the doudenum). I do agree with what Keona said. You have to change your life style. I sleep on 4 or 5 pillows and have done that for many years now. Be aware of milk. My doc told me that drinking milk takes...
  5. M

    Tapering pred

    tapering pred Hi again, I have finally reached 2.5 mg pred and I can't go lower than that. I have been on this dose for more than one month and a half now. I am already in a flare up and don't find any benefit out of taking pred. The problem is that I started tapering it every other dday, BUT...
  6. M

    Feacal calprotectin how does it help diagnose ibd?

    Well, I have had this test several times and it didn't show anything. It is carried out to show that there is an inflammation in the abdomen but does not specify the place. During my last flare up, it came to be 4mg only. I've read that when one is in a flare up, the results of this test are...
  7. M

    Right side gurgles, right side ache

    I do too have pain in the low right quadrant with pulse. It always annoys me at night and sometimes I cannot sleep becauses of it. I take crohn's meds based on symptoms and not diagnosis. I do agree with Pen that pain disappears at the doctors and that keeping a list will remind you of all the...
  8. M

    A lot of bacteria in stool?

    Hi again, I mentioned that two weeks ago, I had to be admitted to hospital because of very low hypotension, vomiting and diarrhea. I was kept there for 2 days and then released after having a lot of iv fluids. Well, I have been sick for two weeks now and bedridden. The blood tests revealed that...
  9. M

    Crohn's + gastritis??

    Hi Keona, Wishing you all best of luck tomorrow. Well, I don't know what tecta is and I'll ask my doc about it. Duodenitis means inflammation of the duodenum. I think that you all are right since i have inflammation in my stomach, duodenum, small intestines and colon. It's not a cioncidence...
  10. M

    Crohn's + gastritis??

    Thank you Lee and Welsh-bird, I'm glad, although it's not a source of happiness, that there are other "sufferes" there and I'm not the only person as my mum keeps telling me that what exacerbates my problem is that my stomach hurts me, too. Well, I do agree with you, Welsh-bird that 80 mg...
  11. M

    Prednisone tapering

    Take care that you don't go down very quickly. I have been on pred for 8 months now. I started with 40 mg and am now on 2.5mg and can't go less than that. It was easy to go down till 20 and then I started to lower the dose 2.5 mgs every week. It took me long time, I admit, and whenever I try now...
  12. M

    Crohn's + gastritis??

    crohn's + gastritis?? Hi,, does anybody suffer from crohn's in addition to GERD, gastritis and duodenitis? The problem is that my stomach dictates which medications to take. I have been on 4g salofalk and i stayed well for 2 months. When my stomach flares, i have to resort to pentasa enema. I...
  13. M

    Question for women

    Hi matty, I don't think that it will be a problem. I remember when I had my last upper endoscopy for my stomach, i had my p and I asked my doc whether i should postpone it. He reassured me that it wasn't a problem at all and that they could handle any situation and told me even if you are going...
  14. M

    High neutrophils

    high neutrophils Hi, my condition has deteriorted lately. I have been taken to the er on sunday because of low blood pressure 80/50, then 90/60. I was given three litres of iv fluids and still my pressure dropped again so they decided to admit me to hospital especially that i was vomiting, had...
  15. M

    Pentasa enema side effects ??

    pentasa enema side effects ?? Hi, In my last post, i mentioned that I have had undetermined crohn's for 4 years now. I have had a a number of flare ups. The last flare up started last september and I'm still suffering from it up till now. Three weeks ago I was diagnosed with proctitis and was...
  16. M

    Proctitis and crohn's??

    Thank you very much Jet. I'll ask my doc. The problem now is this nasty, horrible nausea. I decided to lower the dose of metronidazole. I know that this is not right and I know my doc very well; he will give me something else stronger than that if treatment fails but nausea is really awful.
  17. M

    Proctitis and crohn's??

    proctitis and crohn's?? Hello everybody, I have a question please. I'm a 33 year old female. I haven't been diagnosed with crohn's yet. All I have been told is that I'm suffering from undetermined corhn's. I have been suffering from a flare up since last September and was put on Pred 40 mg...
  18. M

    Diarrhea after tapering pred?

    Thank you very much. 15 mgs with 4 g salofalk started to work. The problem is fatigue and sleeping a lot but I'm trying to cope. Take care.
  19. M

    Diarrhea after tapering pred?

    Thanx a mil, Kirsten, You are right. Things got worse. I took Lomotil but the diarrhea won't stop. So, reluctanlty, I called my doctor and he upped the dose to 15 mg but didn't tell me for how long. I guess I'll keep it 15 mg for 2 weeks and then lower it to 10. Hope it works this time.
  20. M

    Diarrhea after tapering pred?

    diarrhea after tapering pred? Hi, I started tapering pred from 40mg. Now, i'm on 10. I noticed that diarrhea has returned again. Is this normal? I have been suffering from unexplained constipation and some of the members, thankfully, told me that it was because of pred. Did anyone experience...
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