Search results

Kim, Quinoa would be considered an "illegal" food on the SCD diet as it is 60 percent starch. Here is a complete list of legal and illegal foods for the SCD diet, that I think you will find very helpful. http://www.breakingtheviciouscycle.info/legal/legal_illegal_a-c.htm

Thanks for the update. I sure do hope that you hear back before the weekend - its always frustrating when the weekend comes, and no news and then you have to wait until the following week. I'm so glad to hear that you are having the lab work done to see if Caitlyn has built up antibodies...

Hey Kim, Was thinking about you guys today and wondering how everything went with the MRI? Do you have to wait to see the doctor again to get the results? Kelly

I am proud of my daughter for the way she has battled Crohns head on over the years - just never gives up! There have been times when I have seen her looking so terribly ill, and she just never gave up. These kids remind me of little warriors - all of them are heroes in my eyes, and deserve...

Hi Kimmidwife, I feel so bad for Caitlyn (and you!) having been in this predicament myself. I think you are doing the best you can, and that is all you can do! I am so sorry that she has had a tough time with the EN. You know my child would not do the SCD diet! I just want you to know that I...

Hi Kimmidwife, I was thinking about you today, but was so rushed off my feet, i did not have time to correspond. How was Caitlyn today? Does she enjoy drinking the elemental drinks, or is it something she has to force herself to do? Was just thinking that perhaps a G tube might suit her...

Although I do not have IBD, I was diagnosed years ago with pernicious anemia. My lab work showed high levels of intrinsic factor antibodies. For the rest of my life, I have to give myself a monthly 1cc B12 shot.

Hi Kimmidwife, I just replied to your question, and then lost the whole post!! It just disappeared because I am not allowed to post URLs yet!! So here goes again:) The million dollar question is what to feed our kids while they are flaring! For as many times as we read that a certain food...

Kimmidwife - you asked how long my daughter waited until she ate again. I had no guidelines from any doctors back then, and just did what I thought was best. I remember that in the beginning, I turned the rate down VERY slow on the pump. Then I would steadily increase it. If I noticed that...

Hi Tesscorm, The EN put her in remission for about 4 years. She stopped the EN after 2 years, and just drank the cans of Peptamen orally to supplement her diet - and still stayed well for 2years after that. She eventually flared again, and was put on Remicade. She is older now, and although...

My 12 year old daughter was diagnosed with Crohns in the 90's. After 3 horrible years of watching her suffer, all on my own, I decided to try NG tube feeding. She was on TPN with a central line in her chest. The doctors did not support me. Told me that it "doesnt always work". I did my...

I am so sorry to hear about Izz, and all that she has been going through. I know how tough it is for you and her dad too. My child was diagnosed at age 11, and started NG tube feeding around age 13, and it was absolutely unbeliveable how much it helped her. I cannot believe your insurance...