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6mp, humira and remicade definitely aren't the only treatments available and I can understand your hesitation to take them so early in the course of your Crohn's. It sounds like your symptoms are mild, but please bare in mind that the severity of symptoms doesn't always reflect the severity of...

I eat rice krispies every day and have no problems :)

Hi n00b, Sorry you've got a difficult decision to make. Bear in mind that the actual risk of cancer is still small in absolute terms on Humira or Remicade. I'm not sure what the actual figures are but think of it like this: If being on humira or remicade gives you a 50% increased risk of...

Purple, has your doctor tested your Azathioprine metabolites, 6TGN and 6MMP? I was unresponsive to Aza initially, but it turned out I wasn't metabolising it in the optimal way, producing too much 6MMP (the bad metabolite) and not enough 6TGN (the good metabolite). My doctor added Allopurinol to...

Same for me too. I no longer take Pentasa and since stopping I've had no purple stains on the toilet seat and no colour changes when my urine comes into contact with bleach.

I had the same thing with bleach turning red with my urine. Scared me the first time it happened, but when it happened again I cottoned on. I'd love to know the true cause!

Thanks for the response caprivi - that's really interesting that you had a similar experience to me. Are you fairly sure the vitamin D was responsible for your vivid dreams? I haven't retried my supplement since stopping it back in August but do intend to at some point. It'll be interesting to...

I wonder why they need to add artificial sweeteners since EN is loaded with sugar? Seems odd to me!

Not all EN formula tastes bad, so don't assume that you won't be able to drink it - it's definitely worth trying before opting for an NG tube or peg. I was solely on E028 for over 8 weeks and really liked the flavours, especially the ones that came in a carton premixed. I know not everyone...

Hi Emma, I'm sorry to hear of your struggles, Crohn's can be such a cruel disease - made even more difficult by the fact that we may look healthy on the outside even if we're falling apart on the inside, so people don't always realise just how much we're suffering. Could you speak to your...

Hi Pamela, That's a really difficult situation to be in, hugs to you! Depending on where the narrowing is located, could an endoscopic balloon dilation be an option? Alternatively, if a blockage is highly likely you may be able to hold off surgery a little longer by going on enteral...

As others have said, having constipation does not rule out having Crohn's, and I'd question any GI that told you otherwise. Good luck with the colonoscopy, whilst I hope you don't have IBD I hope you manage to get some answers. Sarah

No surgery, and I've had Crohn's for 13 years.

I had the same thing and it stopped when I came off Pentasa. If you currently take a 5ASA drug it's probably the culprit. As far as Im aware it's not something to worry about, just annoying really.

Really interesting, thanks!

Is your GP doing anything about your high levels, or given you any advice? Potassium is a strange thing, even being a small amount outside of the normal range can be really dangerous. Are you having any symptoms, like irregularities with your heart beat? If your doctor hasn't given you any...

I'm no doctor but 4.2 isn't low - the normal range is approx 3.5 - 5.5, so 4.2 is pretty much spot on what it should be. 6.2 however is on the high side, did you change your diet to include more potassium rich foods, or take any potassium supplements?

I'm really sorry about that NGNG, in my opinion the doctor is responsible for discussing the pros and cons of treatment with you. Even if they thought the osteopenia was mild enough to justify not treating it they should have at least said so. Do you have any idea what you T scores were from...

Don't worry, I think we've all done the same thing at one point or another. At least you don't have to go in on a weekend :) I hope your op goes ok on Tuesday. It sounds like you've got a lot going on in your life at the moment, I know the feeling well!

10th Oct is a Thursday, 10th Nov is a Sunday. Maybe you just looked at the wrong month on the calendar?