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Crohn's Disease Forum

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  1. kello82

    Prep menu

    since you still have some time Cat....it may be worth it to make you own chicken stock/broth! i am too terrible at doing things ahead of time to make some for myself, but always during the prep later i wish i had some. to me, the canned and boxed broths are...barftastic. at best... when i...
  2. kello82

    Has anyone ever had this??

    ok that sounds very strange indeed....i would say get to a doc and have him/her feel your abdomen. if there is truly something there, which to me it DOES sound like something is going on....then it should be able to be felt by a dr. meantime, make sure you drink lotsa water, that helps your...
  3. kello82

    Prep menu

    theres lots of diff flavors of jello these days.....peach is pretty yummy and its light orange. o0o0o!!! look at this, i just googled this really quick and this is so fun!!! http://brands.kraftfoods.com/jello/products/flavor-finder/ !! haha it includes the pudding flavors as well but just...
  4. kello82

    Recommendation for Leading Crohn's Specialist?

    hey there.....i got to mt sinai in nyc. the GI i see is Dr. Asher Kornbluth and hes great. like he hasnt been able to fix me or anything but it is not for lack of trying, he is so knowledgeable....and just about every reccommendation from him for OTHER specialists have been spot on. he has some...
  5. kello82

    Belly pain with no other symptoms

    hell yes! my stomach hurts nonstop (less so now since i had the diversion but my colon is still in there), even when i dont have to go to the bathroom or anything. the pain intensifiesd when the poo cramps came on and compared to that, the all day pain isnt bad lol at least that is how my body...
  6. kello82

    Split Buttcrack?

    yep i have experienced the buttcrack crack as well. ouchies. makes sitting on the toilet even more painful lol. and from what i remember i dont think i could ever tell ahead of time...like before it started. i get the ones in the corner of my lips too and those i can catch REALLY early. it...
  7. kello82

    Ostomy fun

    aww jeff, least it happened not in public like you said lol. i feel lucky to never have had such an incident. i do worry abut the clips failing as well....after a while you can see that they get worn down and are easier to slip open and closed...which is not so good. i DO like the velcro as...
  8. kello82

    5 Year Old Daughter w Crohns--Help--

    hi dad of crohns daughter =] i kinda had a similar experience as your little girl.....i wasnt officially dx till i was 9, but my parents noticed changes in me starting when i was 4., thats when i started saying my stomach hurt all the time. in between 4-9 we tried many thiungs as well...
  9. kello82

    Suddenly Hit Me

    i know it sounds weird....but i think in time you will LOVE that the above statement is true. thats what life is about, different experiences, learning....i actually feel BAD for others sometimes who only have sameness. sure they may be healthy and pain free, but some people end up living their...
  10. kello82

    Surgery Time

    thanks for the support and love everyone. it really means so much like i cant even say. im doing allright atm, just gonna take it one step at a time....my parents and i are gonna all sit down and talk about our concerns and thoughts and just everything. see if we can really pin down how we feel...
  11. kello82

    Surgery Time

    not gonna say much as i dont really feel like tying atm, but wanted to give a quickie update here. GI appt today...less than ideal. i mean i am not spectacularly worse but i have lost a few pounds and freaking shitting out the mucous of my colon every 2 seconds. well not that bad, but its a lot...
  12. kello82

    Traveling with Humira

    hey dreamin, when i was on humira i often took it a day early or late. haha i think rarely did i take it on the same day each week.....so yes you should be totally fine to take it a day early. i also did this with methotrex and it was nbd. BUT should you decide to take the med with you on the...
  13. kello82

    Any GI you'd recommend in Manhattan?

    hey jell! i go to mt sinai in manhattan for care, for a GI Dr. Asher (Arthur...he goes by 2 names or something) Kornbluth. have been seeing him for a few years now and hes a great guy. colo-rectal surgeon wise, i have seen Dr. Randy Steinhagen, he actually did my ileostomy. again, great...
  14. kello82

    Colitis and can't sit

    to me, it really REALLY sounds like you have a fistula that has not surfaced. and as you have been dx'd with UC...that may mean you actually have crohns. i dont think fistulas form with UC so if thats what it is...then who knows. if youre not sure what a fistula is, ill be glad to explain...
  15. kello82

    Anyone with experience??????

    hey! you will be ok, this surgery isnt super scary. i take it your fistula is in your butt area? ive had a lot of these before, some of them able to use a seton and some not. i actually still have one chillin down there that has been there for....gosh 3+ years now i guess. MOST LIKELY you will...
  16. kello82

    Our Story and a Plea

    hi and welcome =] i will go vote for you after i write this, you definitly deserve that. i hope it works out for you. i have also been diagnosed with PG, though a slightly different version. i was dx with crohns 11 years ago, but never had a PG issue until april '09 when i had ileostomy...
  17. kello82

    Things Ive lost to Crohns

    how come? does CD prohibit your organs from being viable for transplant? i am registered as an organ donor on my drivers liscence thing but idk if thats official i mean you dont have to go thru any health checks to have that on there they just ask if you wanna be a donor, maybe they do those...
  18. kello82

    Inflammation of the eyes

    mhmmm i hear ya. though my eye symptoms were a bit different but, the same result, steroid drops and then RAPID improvement. for me it would start out feeling like i had something stuck in my eye, a bit like pink eye actually. some redness, pain/pressure, and wateryness. then a bump type...
  19. kello82

    I use to love roller coasters......

    i really liked that =] i wish nothing more for you than that plan to go through! but if it doesnt, dont blame yourself hon. from your post i get the feeling that you are really really hard and judgemental of yourself, and i feel for you on that. i think i dont treat myself well either....but...
  20. kello82

    Asacol pills in toliet

    dont worry TOO much. sometimes its totally normal for this to happen as in cases where it is actually just the outer casing of the pill that comes out. the casings are made to break open at a certain point in your intestinal tract where the medecine is released but the shell isnt digested and...
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