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Crohn's Disease Forum

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  1. L

    The decision : On Biologics or Not

    Thanks for your reply . My gastro guy doesn't ever give me any tests like calpro , my primary care doc will give me CRP . Eyes thing sounds interesting , but I have a great imagination. Will check it out though. I am very interested in your home concoction of EN . I have started in the last 2...
  2. L

    RAPAMYCIN - anyone on it ? New Member lots of questions

    Would the below “Ensure “ fit the bill as an EEN/EN product ? Ensure Max Protein Milk Chocolate Nutrition Shake, 30g Protein, 1g Sugar, 4g Comfort Fiber Blend, 12 Pack Boost seems to have too much sugar , like 24g in each bottle. nestle vionex too expensive peptamen is also too expensive I...
  3. L

    RAPAMYCIN - anyone on it ? New Member lots of questions

    Where do you get EEN ...in a pharmacy, grocery store ? ..is it liquid in a bottle , are there any brands better than others ?
  4. L

    The decision : On Biologics or Not

    If I go on Biologics that seems to be a lifetime decision. If I go on Vedolizimab - what happens if you go off or substitute another biologic down the line ? In general , for those familiar , how often do people here/elsewhere complain that their biologic choice was one they wish they hadn’t...
  5. L

    Daily consumption of fruit/vegetables in OECD countries and crohn's disease prevalence.

    I’m considering biologics [gastro suggested vedolizimab , according to him , because I have a stent and am 77 years old - vedo is the best for me ] . My chrons [which was diagnosed with colonoscopy/biopsies] was described as mild to moderate , But, I’m pretty sure i have had it for years...
  6. L

    RAPAMYCIN - anyone on it ? New Member lots of questions

    I was just diagnosed with Mild to Moderate Chron’s disease My gastro said he rated it between 3 and 6 on a scale of 1-10 I have no bleeding , no black stools and no real pain I have diahreaa - that waxes and wanes My gastro wants me to do zedolizimab infusions because i have a stent...
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