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Crohn's Disease Forum

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  1. tots

    Foul smelling mucus?

    When I go to the bathroom and I am having a flare, it can be green. Your body is getting everything through so fast that the bile does not reabsorb in the small intestine. Great fun! Lauren
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    Vitamin D levels and disease activity

    I am at 18 and I can sure tell. My GI accidentally gave me 50,000 unts a day. I felt so good but, my level was 110. Way to high he said. took them two years to figure that out. Lauren
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    Stopping all treatment

    Thank you Honey! Lauren
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    Stopping all treatment

    Thank you Ron. Lauren
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    Anyone here on SSI and has to be reviewed medically

    My GI Dr told me he has never had a patient on disability- great way to have lost my disability through work. I am currently fighting that. Lauren
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    Stopping all treatment

    Thank you guys for all the encouragement! Before I could stop my meds I got a reality check! My husband was admitted to the hospital "overnight" due to a small pneumonia. One week later, a bunch of tests he did indeed have a case of viral pneumonia. Unfortunately once we found out his cancer...
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    Stopping all treatment

    Thank you Ron. Between my CD and my husbands Pancreatic cancer I just don't know how much fight I have in me. Getting Drs I can trust and who trust me shouldn't be this hard. Lauren
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    Stopping all treatment

    When I joined this group in 2010- I had been in the hospital for 8 days and was rediagnosed with CD through a SBS. I was re diagnosed in 2015 with a CT scan. I have since not reached remission. I failed Humira (severe headaches) and Cimzia- nothing happened there. After looking at my joints...
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    Fatigue

    If I come up with a solution I will let you know! Hope the tide turns quickly for you! Lauren
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    Colonoscopy Question-Term Ileum

    only my first Dr was able to reach that spot. And on CT and SBS thats where my trouble is. Lauren
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    New/additional diagnosis- what does it mean?

    The article I read listed Methotrexate as a way of treatment also Prednisone, that's where my confusion kicked in. Lauren
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    New/additional diagnosis- what does it mean?

    Last week I saw a new Rheumatologist, she went over my medical history, looked at my joints. Asked why if I am still having symptoms with my CD did my GI not add another medication!?! After looking at my joints and symptoms she put me on Methotrexate. Yesterday I got a call from her office...
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    Functional Medicine Institute

    My friend goes to a FMD, its not covered by her INS and she spends a fortune at the office in vitamins and supplements. I could not afford that type of Dr. Lauren
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    Oh gosh this is the most embarrassing question I've ever asked

    That usually tells me I am in for some trouble. Usually a good flare is right around the corner. Hope it settles down soon! Lauren
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    Bowel thickening + constant pain

    Any update? Lauren
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    How bad is bad enough to go to the hospital?

    I have gotten to the point that I have been hospitalized twice and put on IV Pred. It helps but I was in for 8 days both times. Lauren
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    Anyone know of any Crohn's Literate GI doctors in Chicago IL???

    I called CCFA and they sent me a list of Drs specializing in IBD in my area. They were actually surprised at how few were in my area. GI docs are not all the same! Lauren
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    My wifes issuse and the doctors incompitance

    I feel your pain. I have been on disability and it seems like Liberty Mutual does to believe I have CD and in that case will deny my claim. A few weeks ago I saw a new DR. his opinion is the ONLY way to diagnose CD is with a biopsy. I asked the nurse why then did he do over $1100 in blood work...
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    Antibodies

    I am a little late to the party here, I apologize! Can you tell me what antibody markers you had done? I just had some blood work done while getting a second opinion. It was the S Cerevisiae IGG and IGA. I have been on Remicade for one year. they were both high at 57.3 for the IGG and the IGA...
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    Neuropathy?

    Yes Ron I have- working and standing on my feet all day made it worse. Being on disability has helped. Lauren
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