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Does your BP go up when you have your infusion? Do they slow it down?? I seem to remember in the beginning they did. Today not so much. Lauren

As in my case you may not feel the disease spreading but it's possible. I thought taking a low key approach would work. For me I did more damage lesson learned. Not everyone is the same though. Good luck I hope you feel better soon which ever way you choose. Lauren

The longer you have inflammation the more damage to the bowel the bigger the chance of a stricture etc. For me spices play a large roll in my CD. Lauren

I was told that it's very hard it on X-ray or ct scans. Is that true? I have had all the symptoms had a bone density test and it showed changes But not enough to dx anything Lauren

I am sorry your having a hard time! I feel of you in the calling in sick area! I hope things get better soon. Lauren

There can be a grieving process when you realize things will not follow the picture you have always had for your children. I was diagnosed at 28, a long time ago, and I am beyond the laughing it off point to the grieving point in my life. find support where ever you can! you have found a great...

Hi Charlotte- I have not started it yet. Not real excited about it. I also have a really bad sore throat head cold etc. Just started Amoxaxillan for that. The Pharm said I can take both "might" get a stomach ache he said. The Xifaxan is only for 6 days. I am not sure the normal length of...

I too am on Remicade and my Dr just gave me the Xifaxan. I am not looking forward to it. Just want something to start woking and a Dr who will trust me! I hope you are feeling better! Lauren

Thank you Ron I am going to try and find it. Lauren

I am getting tired of proving that I have CD. Unfortunately, only the Dr who originally diagnosed my CD was able to find it during a colonoscopy. That was after a small bowel series found a stricture. Since then my Drs have not been able to reach the spot in the terminal ileum with a scope...

Went to the Dr today and he gave me Xifaxan. It seems that he dosent believe I could be having CD symptoms while on Remicade. Thats a whole other issue right now! Have you ever tried Xifaxan? Lauren

I used to work in a Drs office. Anytime lab work was abnormal the lab would get the results to the dr asap. I drew blood for a routine phx, by the time I came in the next morning the pt was already in the hosp. So don't worry to much yet, I am praying your all ok! Lauren

Sorry your having trouble Ron. Spices seem to be a big trigger for me. Hope it settles down soon Lauren

For me, I think my body is feeling the trouble before my brain registers troubles on the way. I am guessing its anxiety, I just use it as awarding and stay closer to home if I can. Lauren

Never any fun! I was taking conf calls at work from the bathroom, thats when I knew I needed to go out on disability. I was not doing anyone any good. Lauren

Charlotte- I agree MUST have trust with this disease. Its not always feasible to see the CD. Symptoms can chage so quickly. it has been a long 5-6 years. The minute I think we are on the same page, he switches directions again. Lauren

I am actually having trouble, I am just frustrated with my Dr. It seems Like everytime I have an issue I have to prove its crohns all over again. I have just a few days of 10mg of prednisone and this is my usual reaction. I start up all over again. I miss my Dr is Seattle. He said every test...

If your test results are in normal limits does that mean Your in remission and shouldn't have any symptoms? Lauren

Two episodes. After the first my prednisone was upped to 30mgs again. Talked to my Dr a little bit ago. He does not Believe it was my CD or crohns colitis. So I am going back down to 10mgs. Getting really tired of all this!

i have been on Prednisone for 5 weeks, last week I had the calprotectin done and it came back in normal limits. After about 9 months on Remicade I was at a 52, moved the Remicade to 6 weeks and my result was 18. Once I hit the 10mg of Pred, my lower back ache and GI symptoms started up a bit...