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Thanks for doing the trial, Oregon - and you too Rob. It's nice to know that other options are out there still since I have been on most everything and Remicade will surely fail me sooner or later. Hope you keep feeling well, congrats on getting off the pred! MBH

They are similar, but not exactly the same. Humira worked very well for me at first, but only for 4 months. I have now been on Remicade for 2 years and I am in remission. I hope it works for you! MBH

I also took 4000 mg/day when I was on it. 2 pills each at breakfast, lunch, dinner, and bed. (4 hours apart minimum) If you HAD to, you could probably get away with 3, 3, and 2 instead of 3 at each dose. I hope it works well for you. Sulfasalazine was my first maintenance drug in 2002, and...

YAY!! Calmo! I think I'm on tube # 4 or 5. I use a thin smear almost every morning, just as a barrier in case of a leak. I have a tube in my work backpack, but if if I am going out for the day I will put a litle squirt on some toilet paper and stick it in my purse, then I don't have to take...

I was going to mention Kegals like Mountaingem did. The wet wipes may be making you itchy. I use an AWESOME butt cream called Calmoseptine almost every day. It works as a barrier, and doesn't keep things moist down there. I think it was orginally made for protecting the skin around tube...

Remicade infusion today!! This is my 2 year Remi-versary! ILoveYouRemicade!

giggle ^ super giggle ^ I have nothing funny to say now =( Sorry about your diagnosis. Glad you know now, and you have a built in place of support. Is the treatment the same for regular old colitis or is it different? I've never heard of it. Hope you're feeling okay.

The only thing that I can think of is that maybe it was a 6MP reaction to the sun? Not sure when you stopped the 6mp. I had a bad sun reaction to Imuran (similar drug) once, and there is a sun warning right on the label from the pharmacy. Here is a rash that I had, and although it was terribly...

I've never heard to stay away from green. I would definitely stay away from red as well, since that's what most people are told. I wonder why most docs say to mix the miralax with gatorade? Is it to help stay hydrated? If you mix it with something else, maybe you will get too dehydrated. For...

Hi CrohnsSux, Welcome to the forum. We never mind questions, so don't you worry about that. How are your symptoms right now? What are you doing to manage your Crohn's? Have you been on any meds yet? I would tend to try something proven possibly before trying something like that, but that's...

I would hate to chance it getting ruined. I'd be afraid to travel with it. I wonder if there is any way to have Abbott ship it to a pharmacy wherever you will be staying. I wonder about what restrictions the airline would have with it as well, it being a liquid, and a sharp object. I guess...

The admin of the site is actually well respected by the community here, so by bashing her on this thread, you are already losing points as a newcomer. You might want to message the admin or a mod privately instead of griping about it openly. I agree with her request on your first thread. Kinda...

The way I see it (and I could be completely wrong) is that my immune system is overactive, and the Remicade levels it out to normal, doesn't make it underactive. I've been on it for 2 years now and haven't noticed any increase in colds or anything else. My kids have even had viruses that I...

Sulfasalazine is the first drug that I was put on, and it kept me in remission for several years. I can't remember if I started it while on prednisone, but I imagine that would have helped it kick in. I didn't have any side effects from it.

I've not heard of one instance in which anyone had an allergic reaction to restarting Humira. (Not saying that it hasn't happened, just saying that I have never heard of it.) I have heard of MANY reactions to Remicade when starting it after stopping for a while. I do know that there is a test...

I had an itchy rashy thing going on and I was sure that it was the Remi too, along with some acne. I stopped Imuran and haven't seen it in over a year now. As far as I know, premeds are usually taken orally, it's when reactions happen that they get it into you IV style. I got too sleepy taking...

The member that Dallies mentioned is not on here anymore either. I know that she was a member on a PG specific forum, I will ask her the name of it. You might find more people battling PG there than you will on here. I was going to say the same thing that Katie said, basically. Don't let...

Hi Charlotte! The same thing happened with my with the Humira. It worked amazingly well, but then quit after 4 1/2 months. My insurance refused weekly shots though. I have now been on Remicade (infliximab) for 2 years and am in a fantastic remission. Maybe you could try Remi? People...

This may help. Or not.. http://www.goodfaithcasting.com/

I LOVE THAT ^ SO MUCH!!! And I am not a big fan of tattoos, but I REALLY like yours, Missy_Anne! I hate to be negative, but I really truly do not believe that they will find a cure. I just hope for new and better treatments. Hope would fit for sure. Maybe strength or something along those...