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We all react a bit differently,but I also don't think these are Remicade symptoms.

Merry Christmas!

I also bring a 'infusion day kit' with me on infusion day. I bring water, a few snacks, a book and a tablet. Honestly, once I'm hooked up in the recliner with a warm blanket and my book, I have napped a time or two. :)

Glad you are at home now.You have been through a lot and hospitals are not the place to rest.I look forward to your update.

Let your GI know this is happening.

I'm glad your infusion went well.The first one can be a little nerve racking.Having lunch served to you helps the time go by. :)

Hi Lara Have you tried a heating pad? Sometimes I find it can help along with a gentle massage of the area,gives a bit of relief.It might sound odd,but I take a hot bath and it seems to help move things a long.Since you are in Summer right now,that may not be to appealing. :) It's Winter here...

I also have fistulas and setons. Five fistula and three draining setons. Like you,I also follow the SCD.Sometimes we have to turn to what will prevent this disease from causing further damage,even though we would prefer not to. Make sure you bring any concerns you have up with your GI. Good luck!

How are you today,Lara? Did you go to the ER?

Hi CountryGirls How did the Monday appointment go?

I had no pain during my colonoscopy. I remember the nurse saying the doctor is here and she was going to increase my IV drip...and I woke up in recovery. I was also told I may have gas after and I sure did.

Welcome Quite an interesting job you have.There are a lot of us here,each with our own story.I'm sure you will find the forum interesting as well as informative.

We are here for you long time crohnie,when you feel like sh#t.

I'm glad you feel comfortable with your new GI.It is understandable to be apprehensive about more aggressive treatments.Feeling comfortable with your GI makes it easier to discuss treatment options and bring up concerns,in my opinion. Always good to have a supportive spouse/partner.I am also...

Did they do a fecal calprotectin stool test? This test is useful for diagnosis. What we eat and how it affects us is a very individual thing.I agree with DJW about a food journal,they can be helpful.Does she have pain with liquids as well as solid food?

Hi Andrew All your levels are normal? So,they did test for B-12? Just curious.I find dealing with fatigue a challenge myself.Many of us understand not being able to accomplish what we use to be able to do.I find I can still do certain things,it just takes me longer to accomplish the task. Is...

I'm glad you can confide in your best friend. I agree with you,it is not something I go around telling people.I do let the people I am closest to know about my CD.I don't fill them in on all the details how CD affects me.They know there are times I won't be able take them up on an...

Welcome Heatles Glad you opened up.Many of us use diet to fight this disease.Everything we put in to our bodies is part of our diet.

Hopefully further tests will provide definitive answers. There is an undiagnosed support group here. Perhaps that may be helpful with questions you may have.

Welcome Definitely tell us your story.Like scotsma says,leave out the 'F' bombs but be passionate.You are going through this.I am from Maine too.