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Thanks everyone. I dont know what I would have done the last few months if I had not found this sight and all you wonderful and helpful people. Thanks so much

Yes the new Gi is at another hospital. He is about an hour away. The the other Gi or whatever you want to call him was about 35 minutes away. So its not much further. Just worried a little about driving new places lol. But I will get use to it. I will do anything for Ko to feel better.

I will keep my cool tomorrow. I will go in there with a smile on my face knowing this is the last time we will be in that office. It just makes me so mad. I will for sure post a review for this Gi. My Little Penguin just posted about Improve care now. I had heard about it a few months ago when...

I heard about this a few months ago. I watched a clip on youtube We had planned to move to NV as soon as our house sold. Well in the meantime we were told about Kota having crohns. So I started researching Dr who specialized in Crohns in NV. Just to know a littlebit. Improvecarenow came up. So...

Ugh I am so glad that we are going to be seeing a New Gi. Hope I am able to contain myself tomorrow when we see the old GI. Everything that I have read in Kotas records are not right or what he told us. First we were told that it was a very mild case of crohns. I read in records its severe...

Thinking of you. Sorry I am of no help.

Oh I wont let them tell me No again. I still have so much to learn. But I learn a thing or two everyday :)

I asked about it one other time and was told there was no need to check it.

No his B12 has never been checked. Gi said we could have his Magnesium checked becasue they had never checked it. When I asked nurse about Vitamin D and other vitamins she said I would have to talk to the dr Monday. So B12 is another one I am going to ask about. Thanks

Gonna to have his magnesium checked Monday. I found some info that I thought was interesting on Magnesium. I posted it last night here. Everyone might have known it but I didnt

That was what they originally thought may have been the cause. They took him off of it for about 3 weeks and there was no change. So I asked to put him back on it because it helped with his headaches and helped him to sleep. He has such a hard time sleeping. He is on 25mg at night

We were not given any instructions when we were given 6mp.

Oh yeah David he was on Pentasa but they took him off of it about 3 weeks ago to see if it would help with his high heart rate. He is taking 12.5 mg 6mp, 100mg Allopurinol, 40 mg neium, culturell, amitriptyline and peppermint oil. He was taken off 1500mg pentasa a day, and taken off his bentyl

No he doesnt drink dairy or eat dairy. He may have 1 piece of cheese every other week or so. Never been a dairy person. I am sorry I got my intials wrong. They have alwasy told me that the TPMT enzymes and Metabolites test was the same. See I learn something new everyday. His white blood count...

Well Gi called me back today. The labs from Monday are back. Said his regular weekly labs came back normal. But the TMPT was abnormal again. This is the second time. The forst time we cut back to 25mg. Well now we are cutting back to 12.5mg I am not sure what all this test for. When it came...

Thanks everyone! Kota has never taken any vitamin supplements up until a he was dx with Crohns. We were always told to never give him any with his kidney disease. So we havent until now. Had to get it cleared from Nephro and he said it was okay as long as it was low dose. Gi nurse called me...

Well we decided to hold off on the Colonoscopy until he gets to the new GI office. We went there today to take his records since the hospital he is at still had not sent them. It was over 200 pages so I didnt want to fax either. Thats just since he was Dx with Crohns so I would hate to see his...

Thanks Crabby.. He has been off the Prednisone for a little over a month. He was also taken off 1500mg a day of Pentasa about 3 weeks ago. He seems to feel some better since the Pentasa was stopped. He has lost 12 pounds since the steriods were stopped. But steriods made him gain some weight...

Is Magnesium usually checked when labs are done? If so do they have an intial or will it say magnesium? I maybe fishing and be totally loosing my mind because I so badly want to figure this out with Kota. But I have been reading about magnesium today. So any input you have would be totally...

Hi everyone. I hope you and your littleones are all doing well. I have learned with Crohns you maybe doing well one minute but in the drop of a hat you may not being doing well the next minute. Kota has his good moments and his not so good. He is at least laughing more. So thats great. I love...