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Well fever went down yesterday mid day and so far hasnt been back :) He acts like he feels so much better. At least laughing and playing alittle. He finally ate a few bites of baked potatoe tonight. Hasnt eatten in a couple of days. He last lost 8 pounds since he got sick on Sunday. I still have...

Well we are back from the PCP office and of course she is of no help. All she could say was well it looks like they already did labs. So I release for her to fax what records she has to Dallas also. Then we went to have the xrays done. Stopped by Gi office to sign release to forward records to...

We are on our way out to see a pedi in his primary care ofice. His primary pedi is not involved at all. Gi nurse just called back and wants him to come there also to have xray at hospital NOT through ER. I also called another GI that specializes in Crohns at Dallas Childrens they are waiting on...

Still ran fever all night. Not sure what to do now. He says he still feels so bad.

Ugh people just piss me off. We went and spent all day at the hospital. The dr today well let me just say... He was one of the worse doctors we have had so far. He said I think its dumb you are back but whatever. They did labs yesterday and everything looked good. But we will redo them today...

Call the GI at 8 this morning cause he still had fever. Got to almost 104 at midnight. Nurse didnt call back til 1030 so now he has had tylenol and no fever. She said I need to take him to the ER and let them do some pictures since they didnt do any yesterday. Ko woke with a nose bleed this...

I am so glad he had you have had a good day. I love when we have days like that Its always so great to see them playing and doing things that you know they love so much. I totally hate that Ko broke his wrist so I dont want this to come out wrong. But it was so great to see him out playing and...

I am so glad there is a place to talk about poop :lol2: I always feel crazy talking to others about poop but I know here everyone goes through what we do on a daily basis. Kota has never really had a bowel movement that looked what I would call normal. Always changes colors and form. I always...

It is heartbreaking.It breaks my heart to see him hurt. And he is afraid to say he feels good afraid that will jinx it and he will be sick and hurting again :frown:. The fever is coming down with tylenol but doesnt stay down til time for another dose. He is just laying around today feel...

He has been on it since May 10th. When they dropped the 6mp to 25 mg a day instead of 50mg they added the Allopurinol. They took him off the Pentasa at that time also thought maybe that was playing a part in the high heart rate. About 5 days after stopping the Pentasa his stomach felt better. He...

Called GI this morning because he still had fever and wasnt feeling good. I knew the side effect list on the allepurinol said to report fever. When I talked to GI on call she told me to take him to er. So we went to Er. The doctor there was awesome. I told her what was going on and that Ko...

Fever question Update after trip to ER Updated AGAIN :( Kota hasnt real good today. He cried and whined alot in his sleep last night and when I would ask what was wrong he would say his tummy hurt real bad but never really woke completely up. The only thing that he did different or ate diffrent...

sorry they are so big

Okay an now one of me and Ko. Yes we got good news today. All my test came back normal. We are so relieved

Kota with his new cast. God I love this boy so much

His favorite was pink and black forever. Now with purple being crohns color it seems over rule now :) How do I post a picture? Was going to post one of Kota but cant figure it out

Skyler and Kota have both slept most of the day so its been really quite here. I did call the Cancer Center back today and asked some questions and to see when I needed to go and have othe test done. I was told I go this friday. I have another Mam and ultra sound done and then we will go from...

Well I am about ready to find a hole adn crwal into it with my kiddos and DH and never come out. No I know I cant do that what would that solve. I got a call yesterady afternoon from the cancer center where I went and had my mammagram done last week. It seems it didnt come back they way they...

Talked to Ortho and he will have other cast put on Wednesday. He says he wants it purple and black :) Fixing to go have weekly labs done at hospital. He says he is feeling pretty good this morning :) Crohns Mom yeah no one usually believes he si allergic to motrin. We even fight with GI about...

They are still trying to adjust Kotas medicine. Still no Pentasa.. His tummy seems to fell better being off the Pentasa but it hasn't really made a difference in his heart rate :( I thought for sure it would. Still gotta figure this out. But I am sure we will. We have been trying to get ready...